Handling a Diagnosis of Tardive Dyskinesia

Tardive Dyskinesia (TD) is a condition of involuntary, repetitive movements of the jaw, tongue or other body movements. It frequently is a side effect of the long-term use of antipsychotic drugs used to treat schizophrenia or bipolar disorder. It is almost always permanent. I’ve been told Vitamin E might help a bit.  Benzodiazepines have also been used with mixed results on a short-term basis.

Some examples of these types of involuntary movements include:

  • Grimacing
  • Tongue movements
  • Lip smacking
  • Lip puckering
  • Pursing of the lips
  • Excessive eye blinking

(Wikipedia)

I recently was diagnosed as having TD after the use of Zyprexa. My version is my lower jaw moves from side-to-side, unless I concentrate on not doing it. I quickly revert to this involuntary movement when I’m not aware of it. I recently saw a video of myself (with my family) and sure enough there I was, doing the ‘jaw thing.’ It was very obvious. It was also very embarrassing. (I have the ‘lithium jitters’— where my hands always shake, but TD is different.)

There are a couple of things I might mention:
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1) I’ve discovered that there is a real social isolation with this TD stuff. To be doing this in public is “not acceptable.” I have had people come up to me wanting to know what’s my problem. Since I can’t control the movement I just say, “It’s my meds— they affect me this way.” In a way it’s like wearing a neon sign saying, “I’m a fruit cake.” Having a mental illness is stigma enough, but the TD just puts a new edge on it.

2) As a natural introvert the isolation has only deepened. (I avoid crowds and most social engagements.) I guess if the truth be told, I’m uncomfortable when others look at me strangely or whisper to each other. My standard ‘paranoia level’ has taken a new twist. I feel I’m compelled to explain. I guess I’m embarrassed when others are embarrassed.

3) I settle myself down in my faith to cope. I know I’m not alone in this– the Lord Jesus is always with me. He holds me tight through all these twists and turns. Since I isolate myself so much, I savor the connection I have with a few friends who have become inured to my condition. Social media helps out— Facebook is a big help, as well as my two blogs.

4) One of the things I try to remember are the issues of selfishness and pride. I keep reminding myself it’s not about me all the time. One of the significant areas mentally ill people deal with is self-absorbed thinking. It seems it comes with the illness.

5) I try to keep a sense of humor everyday. It breaks down the mental pain to tolerable levels. We can take ourselves too seriously sometimes. Be more patient with yourself. I know I have to.

I ask that you remember me in prayer from time-to-time. I’m in ‘uncharted waters’ (it seems) and I sometimes feel all alone with my mental illness and all its tangents. I want good to come out of this. (An instantaneous healing would be o.k. But, I’m not too finicky.) Sorry for so much.

If you can’t pray, don’t feel at all impinged upon.

A Savior of “Crazy People”

“For you are all children of the light and of the day; we don’t belong to darkness and night.”

1 Thess. 5:5

This is my personal testimony of the grace of God.

A year before I received Christ as my Savior, I was hospitalized in a U.S. Army psychiatric ward.  My uniform was replaced with the distinctive attire of a mental patient.  Ironically, I’d been attached to the same hospital working on the pediatric floor. 

And to make things only slightly more surreal was that a medic there on the psych ward was someone I bought drugs from!

Previous to this hospitalization, I had dropped two hits of LSD and found myself in an awful mess.  It was night out and I was hallucinating badly.  I had lost control of my thoughts.  I had pretty much flipped out and it entered my drug-saturated brain that the darkness would kill me, that very night!

Utterly convinced I was going to die, my mind seized upon the street lights outside. 

If I could stay in that illuminated circle I would escape dying. Somehow I knew that the light would save me. So I remained under that street light for several hours.  As I stood I could see very clearly the boundary between the light and the dark.  I knew I was safe as long as I didn’t wander, I knew I would stay safe.

But despite that very traumatic experience, the drugs and my mental instability continued to slide. 

I was now shooting up cocaine, crossing my “no needle rule.”  I also became quite the heavy drinker, with whiskey for breakfast.  I had one basic rule though.  As a medic who worked in maternal/child health, I had one of the best assignments in the Army.  Many people coveted it, and I was not going to endanger it with drugs or alcohol. 

I never went on duty loaded.  That was my rule. I would be the best medic the Army ever had.

Shortly after my psych ward discharge, I was reassigned to Labor & Delivery on the night shift.  One slow time I was pulled from my duty there to go on an ambulance run as the medic in charge.  We were called to the officer’s housing where an older man had died in bed. This got me thinking.  Back at the hospital, I returned to L&D.  But on the way back I took a shortcut through a ward on another floor.  That’s when I found it!

On a waiting room table was a small book called, “More Than a Carpenter” by Josh McDowell.  I picked it up, reading it right on duty because there was no one in the delivery room.  By the end of my shift, I was well on my way to becoming a Christian.  It was a book solidly speaking of the light, and of the dark.  And I knew beyond a doubt that I couldn’t remain in the dark anymore.

I was honorably discharged from the U.S. Army in June of 1982. 

I became a born-again believer shortly after that.  I went to Bible College that October.  Life has become radically different, and over time, I became a missionary, pastor, and Bible college instructor. 

I married my sweetheart and I now have a wonderful family. I attend a great and wonderful church faithfully.

I want to tell you that Jesus is real, He is alive and the Bible is true.  I have been lifted from the dark and I am not afraid anymore.  Jesus is my light.

“The people who sat in darkness
    have seen a great light.
And for those who lived in the land where death casts its shadow,
    a light has shined.”

Matthew 4:16

Some Very Good Links:

“How to be Saved,” gotquestions.com

Alaska Bible Institute, my Bible College, (a great school)

“More Than a Carpenter”, by Josh McDowell, (check it out on Amazon) 

 

I’m More or Less Oblivious

Inspector Clouseau, (Upon discovering stolen artifacts) in The Pink Panther 2

“Ah yes, the Shroud of Turin! We will have to dry clean it before we return it.”

______________________

I honestly think that our bumbling attempts to follow Jesus are entertaining angels who watch our efforts and shake their heads in astonishment. “Did you see what Bryan just did?”

I’m the “Inspector Clouseau” of the spiritual realm.   😁  

Maybe you can relate?

Clumsy and very much oblivious, I bungle my way down the path of discipleship, without a clue. It seems when something right happens, I still end up butchering it. The Holy Spirit has His hands full. Scripture tells me He has no regrets.

We have experienced so much, and been given so much light.

And yet we consistently choose to trade it for a lie. For the most part, I don’t sin automatically, I sometimes choose it deliberately.  People don’t sin because they feel they have to. We sin because we like the pleasure it brings. We sin because it feels nice. It’s often a mask to cover the pain.

It’s a patch for the pain of my twisted up life.

We sin because it brings a thrill to our bodies, and excitement to the boredom of our everyday lives.  We sin because we believe the lie that the pleasure it brings, though passing (Heb. 11:25).

Sin happens when I look at anything or anyone other than God.

The issues I have are both spiritual and medical.  I survived a brain tumor and I need to walk with a cane. I have constant vertigo. My right arm is paralyzed. I struggle hard sometimes. I have some struggles with social anxiety. But God gives me buckets of His grace.  I know first-hand his agape love for me.

But He will not bless my disobedience and rebellion. 

When we announce to the world that “Jesus is Lord” we can expect God will hold our feet to the fire over this.  The Holy Spirit will not negotiate when we suddenly decide we are hungry for sin.  Apprehended by grace, we must fully surrender all claims we have to sample sin’s delights.

Who do we find joy in? It really does matter.

In the middle of my battles to be a believer, I must remember joy.  I cannot imagine being without it.  I’ve been clinically depressed pushed to the point of suicide.  But God gives me joy in my darkness.

“The joy of the Lord is your strength.”

Nehemiah 8:10

“For the Lord takes pleasure in his people; he adorns the humble with salvation.”

Psalm 149:4

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Your Dark Past

“For the kind of sorrow God wants us to experience leads us away from sin and results in salvation. There’s no regret for that kind of sorrow. But worldly sorrow, which lacks repentance, results in spiritual death.”

2 Corinthians 7:10, NLT

“You will have mercy on us again; 
 You will conquer our sins.
 You will throw away all our sins
 into the deepest part of the sea.”  

Micah 7:19, NCV

 
I’ve done many evil things in my life that I am ashamed of. Regret and sorrow over my sins frequently trouble me. But I always come back to see my sins covered by His blood.
 
I’d probably go insane if all I could do is see my sin without a Savior.

“Properly remembering our past sins with shame will deter us from repeating them and help us receive God’s saving grace.  When we recall our failures through the lens of Christ’s mercy, God produces in us ongoing repentance and deepening humility.” 

–Robert D. Jones

I have walked in self-hatred for many years.  I know all about loathing, fear, and paranoia over my many sins.  These things have handicapped me spiritually, and hating yourself is a terrible way to live.  My struggles with guilt and regret have deepened my sense of despair and depression. 

I’ve come to a point where I find that I am ashamed of my shame.

I have included the lyrics to Bob Bennett’s song “Lord of the Past” in this post.  He is a gifted songwriter and an exceptional guitar player.  (I can’t find it on Youtube.com.)  If you’re like me, you will find that you resonate with those who have been assaulted in the past.

We now speak a common language, and we understand each other. 

We are those whom Jesus has completely forgiven.

LORD OF THE PAST
Bob Bennett
© 1989 Matters Of The Heart Music (ASCAP)  

Every harsh word spoken
Every promise ever broken to me
Total recall of data in the memory
Every tear that has washed my face
Every moment of disgrace that I have known
Every time I’ve ever felt alone

Lord of the here and now
Lord of the come what may
I want to believe somehow
That you can heal these wounds of yesterday
(You can redeem these things so far away)
So now I’m asking you
To do what you want to do
Be the Lord of the Past
(Be the Lord of my Past)
Oh how I want you to
Be the Lord of the Past

All the chances I let slip by
All the dreams that I let die in vain
Afraid of failure and afraid of pain
Every tear that has washed my face
Every moment of disgrace that I have known
Every time I’ve ever felt alone

Well I picked up all these pieces
And I built a strong deception
And I locked myself inside of it
For my own protection
And I sit alone inside myself
And curse my company
For this thing that has kept me alive for so long
Is now killing me.
And as sure as the sin rose this morning,
The man in the moon hides his face tonight.
And I lay myself down on my bed
And I pray this prayer inside my head

Lord of the here and now
Lord of the come what may
I want to believe somehow
That you can heal these wounds of yesterday
So now I’m asking you
To do what you want to do
Be the Lord of my Past
You can do anything
Be the Lord of the Past
I know that you can find a way
To heal every yesterday of my life
Be the Lord of the Past.