A Failure to Understand [An Excerpt]

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Excerpt from “A Firm Place to Stand”

BY MARJA BERGEN

I’m disappointed when friends and family who know me well say things that reveal a gross misunderstanding of depression and how it affects those of us who suffer from it. One person close to me thought depression was something we bring on when we feel sorry for ourselves. Perhaps she thought we liked the attention.

Sufferers of depression would do anything to feel happy and vibrant again. When I’m depressed, many friends keep me at arm’s length. I don’t blame them. It’s not pleasant to be around me when I can’t find anything to talk about except my pain. Depression does that to you: It turns your thinking inward; all you can wrap your mind around is the misery you feel. You end up feeling very alone.

Another person complained to me about an acquaintance with depression who couldn’t manage to do anything more than lie on the sofa. “Couldn’t he just try and make himself do something?” she asked. Nothing I said could convince her that this was an illness that, like other illnesses, couldn’t be helped by simple willpower. Those who have never experienced depression find it difficult to understand how profoundly a brain disorder can affect the entire body.

A long time ago, when I was bordering on psychosis, my doctor put me in a seniors’ care facility for a few days to give me relief from the stress I faced at home. I called a close family member to let her know where I was. She advised me, “You’ve got to pull yourself together and be strong. You have to try harder.” That was insensitive. I was at the facility because I was doing my best to recover – I wasn’t living with eighty and ninety-year-olds for fun. She should have known I always try my best. When I’m trapped in this state, extricating myself is extremely hard. I need time and medication to recover. If I sound angry and hurt, yes, I was.

A person I worked with recommended strongly that I get counseling. “You don’t need those pills you’re taking. All you need is to talk to someone at my church.” She knew nothing about mental disorders like mine. She had no idea what I was dealing with. Again, I seethed, remembering how psychotic I was when I was first admitted to hospital. I could become sick like that again if I didn’t take the medication my mental stability depended on. Would this person tell a diabetic to stop taking insulin?

Christian psychiatrist and author, Dwight L. Carlson, writes, “There are legions of God-fearing Christians who – to the best of their ability – are walking according to the Scriptures and yet are suffering from emotional symptoms. Many of them have been judged for their condition and given half-truths and clichés by well-meaning but ill-informed fellow believers. ‘Pray for God’s forgiveness,’ some are told. ‘A person who is right with the Lord can’t have a nervous breakdown.’”

Fortunately, I have not been treated in this way. The church congregations I’ve belonged to were understanding, yet the stigma continues. It hurts me deeply that Christians who should be compassionate are often judgmental. Church communities need to learn the medical basis for mental disorders and how that differs from the spiritual. They are in the best position to help those in crisis. But when they don’t understand, they are in danger of doing a lot of damage. For Christians, there is nothing worse than to be told our emotional problems are our own fault, the result of unconfessed sin. We suffer so much already. Having to shoulder blame multiplies our mental anguish.

 

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1 Dwight L. Carlson, Why do Christians Shoot Their Wounded? Helping (Not Hurting) Those With Emotional Difficulties,(InterVarsity Press, 1994)

Marja Bergen has lived with bipolar disorder for over forty years. Her mission is to dispel the lingering stigma attached to mental health conditions and to encourage people to lovingly welcome the sufferers into congregations by understanding them better and supporting them in practical ways.

She is the author of Riding the Roller Coaster (Northstone, 1999) and A Firm Place to Stand: Finding Meaning in a Life with Bipolar Disorder (Word Alive). Marja is the founder of the growing faith-based support group ministry, Living Room.  Visit her website and her blog.

 

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Becoming Manic: What You Can Do

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Top tips for coping

These are a list of things that people who have difficulties when they become high or manic have found helpful:

  • Try to get some sleep. Going without sleep has been shown to cause manic states and make them last longer.
  • Eat well. Don’t go without food or eat high energy food. Eat slowly.
  • Use relaxation techniques.  Quiet prayer works well right now.
  • Stay in bed even though you feel compelled to do lots of things.
  • Don’t act on your ideas. In a few days time you may see things completely differently.  Emailing friends now is dangerous. (I know).
  • Don’t buy anything expensive. Some people have found it helpful to give their credit cards/check book to friends.  (I tried to buy a 7 foot potted tree in London, UK once, because it was lonely.)
  • Use medication, herbal remedies, or other things that slow you down and/or help you sleep.  Think “speed bumps”.
  • Take relaxing (rather than high energy) exercise e.g. walking, swimming.  This is a must-do.
  • Make a plan for each day and keep to it. Don’t plan to do too much.
  • Try to do things slowly rather than quickly. Talk and walk consciously slower than you feel driven to.
  • Challenge any grandiose ideas you might have about yourself.  You must do this!
  • Reduce any pressures or stresses on you.
  • Cut out stimulants e.g. coffee, sugar, chocolate, fizzy drinks, alcohol. Some anti-depressants (e.g. the SSRIs like Prozac) can have stimulant-like effects – discuss this with your doctor and consider stopping them.

It may be helpful for you to make a plan about what to do before you get really elevated. You know yourself best, so build as many things into the plan that you feel will help you not do things you may later regret. It may be helpful to draw up a plan, and a list of ‘warning signs’, with a trusted friend or mental health professional at a time when you are not ‘high’, but that can be put into place as you or others notice your warning signs.

Some people believe that ‘getting manic’ is a response to not thinking about or facing things that might be quite frightening or depressing. It might be helpful to ‘get connected’ to such things, by talking and thinking about your life and some of the root causes of some unhappiness in your life. You could do this with a trusted friend or mental health professional.

 

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Sorting Out What is Real

It’s a windy cold, gray day here in Alaska.  Very typical for November up here in “the Last Frontier.” Just as typical  is that I have had a heaviness descend on me, (just like when the fat kid sits on the little kid at the bus stop.)

But this onslaught of present grayness seems to be a premonition, I feel, of what I face trying to survive through another long Alaskan winter, (and I don’t know if  I’m going to make it this year.)

Oddly enough, I’ve been thinking about ecosystems and symbiosis How the trees in a forest touch each other with their roots.  The big tree in the sun, “shares” with the little tree in the shade.  It’s the way they gently touch each other– helping, and encouraging and strengthening.

The Church is very much like this.  As a mentally ill believer, I have a lot of needs and weaknesses.  But knowing this, I draw from what God supplies by means of fellowshipping with others, and prayer, and the Word. (FYI.  I’m not good at any of the three.) But I guess I am planted in a good spot.

I think that when we finally make it to eternity, we will be interlaced with each other to the extent we really aren’t sure who is us, and who are our loved ones and our Christian ‘brothers and sisters.’  One thing is certain–we’re not going to survive the journey alone.  We just can’t do it on our own.

I must keep myself rooted firmly into “today”.  I can’t handle tomorrow’s sorrow today.  I have a special friend who believes he has to live “moment-to-moment”.  He says that this helps him navigate the hopelessness and the despair from depression.  One day at a time, and pace myself.  This, and perhaps, be just a little more gentle with myself? Maybe?

An interesting thought, not sure who said it, but it seems true:

“There are places in the heart that do not yet exist; suffering has to enter in for them to come to be.” 

The transformational reason is that we grow after we hurt, that pain endured will change us.  I think this is what God has intended to happen.  (Good thing, not to waste our sorrows.  After all, we’ve already earned them.)

kyrie elesion, Bryan

(Lord, have mercy)
 
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Whim-Whams

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“In our family “whim-wham” is code, a defanged reference to any number of moods and psychological disorders, be they depressive, manic, or schizoaffective. Back in the 1970s and ’80s – when they were all straight depression – we called them “dark nights of the soul.” St. John of the Cross’s phrase ennobled our sickness, spiritualized it. We cut God out of it after the manic breaks started in 1986, the year my dad, brother, and I were all committed. Call it manic depression or by its new, polite name, bipolar disorder. Whichever you wish. We stick to our folklore and call it the whim-whams.”

— David LovelaceScattershot: My Bipolar Family

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Speaking in code is often our way of communicating to those who are curious. We seldom tell anyone we have bipolar disorder outright. Some of us tried, and failed; we fall back to “I’m just a little blue today,” or the classic, “I’m just woke up on the wrong side of the bed.” We really can be somewhat disingenuous.

All too often these are half-truths that deflect the sticky issues of a mental breakdown. We seek to salvage some kind of dignity, or evade the inevitable stigma that would certainly come if we told the truth. We choose to evade, but at a cost.

I struggle with the stigma of both bipolar disorder and epilepsy. I’m still uncomfortable when others seem uncomfortable with me. So, I have developed a general rule:

Bryan’s Rule #14, “Never reveal your illness, except to qualified people.”

I suppose this adds a layer of personal security. The occasions I have violated this rule have resulted in awkward pauses and odd looks. Afterwards, the relationship changed. It was as if I suddenly sprouted a second head, or something.

As Christian believers, I know we are supposed to walk in the truth. But exactly how truthful am I supposed to be? I’ve always had an iconoclastic streak, and I love stretching the social boundaries of others. Bipolar disorder has been an illness made-to-order for people like me.

Bryan’s Rule #15, “Openness can be a true step toward my healing.”

But it take truth to change. We really need to be honest by bringing things into the light. Obscuring the truth keeps us isolated and distant from others. Will speaking forthrightly about my bipolar disorder be a challenge? Of course. But necessary if I want to heal and cope.

I’m not advocating making a big sign and parading down Main Street. Just to be a bit more honest with others, and ultimately with ourselves. Let’s be comfortable with our own personal “whim-whams.”

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