Tardive Dyskinesia (TD) is a condition of involuntary, repetitive movements of the jaw, tongue or other body movements. It frequently is a side effect of the long-term use of antipsychotic drugs used to treat schizophrenia or bipolar disorder. It is almost always permanent. I’ve been told Vitamin E might help a bit. Benzodiazepines have also been used with mixed results on a short-term basis.
Some examples of these types of involuntary movements include:
Grimacing
Tongue movements
Lip smacking
Lip puckering
Pursing of the lips
Excessive eye blinking
(Wikipedia)
I recently was diagnosed as having TD after the use of Zyprexa. My version is my lower jaw moves from side-to-side, unless I concentrate on not doing it. I quickly revert to this involuntary movement when I’m not aware of it. I recently saw a video of myself (with my family) and sure enough there I was, doing the ‘jaw thing.’ It was very obvious. It was also very embarrassing. (I have the ‘lithium jitters’— where my hands always shake, but TD is different.)
There are a couple of things I might mention:
1) I’ve discovered that there is a real social isolation with this TD stuff. To be doing this in public is “not acceptable.” I have had people come up to me wanting to know what’s my problem. Since I can’t control the movement I just say, “It’s my meds— they affect me this way.” In a way it’s like wearing a neon sign saying, “I’m a fruit cake.” Having a mental illness is stigma enough, but the TD just puts a new edge on it.
2) As a natural introvert the isolation has only deepened. (I avoid crowds and most social engagements.) I guess if the truth be told, I’m uncomfortable when others look at me strangely or whisper to each other. My standard ‘paranoia level’ has taken a new twist. I feel I’m compelled to explain. I guess I’m embarrassed when others are embarrassed.
3) I settle myself down in my faith to cope. I know I’m not alone in this– the Lord Jesus is always with me. He holds me tight through all these twists and turns. Since I isolate myself so much, I savor the connection I have with a few friends who have become inured to my condition. Social media helps out— Facebook is a big help, as well as my two blogs.
4) One of the things I try to remember are the issues of selfishness and pride. I keep reminding myself it’s not about me all the time. One of the significant areas mentally ill people deal with is self-absorbed thinking. It seems it comes with the illness.
5) I try to keep a sense of humor everyday. It breaks down the mental pain to tolerable levels. We can take ourselves too seriously sometimes. Be more patient with yourself. I know I have to.
I ask that you remember me in prayer from time-to-time. I’m in ‘uncharted waters’ (it seems) and I sometimes feel all alone with my mental illness and all its tangents. I want good to come out of this. (An instantaneous healing would be o.k. But, I’m not too finicky.) Sorry for so much.
If you can’t pray, don’t feel at all impinged upon.
“I will instruct you and teach you in the way you should go;I will counsel you with my eye upon you.”
Psalm 32:8
In April 2002, I was sitting in a cavernous waiting room at King’s Crossin London, England. I was waiting for a bus to Cambridge, UK. I sat all alone and stared at the tiled floor at my feet. The doctors had warned me not to travel alone, but I ignored their advice.
And now I was starting to really unravel.
Depression had followed me all the way from Alaska to England. I had pushed my limits and was completely drained and was becoming very confused. I began to cry out to the Lord, very desperately. Sometimes madly. (Read Psalm 88.)
As I sat there staring intensely at the floor, several pigeons seemed to put on a show, just for me. They were fat little guys, apparently scratching out a good living. Several very large windows were open, and these pigeons seemed to have no fear as they took advantage of a meal from bored travelers.
All of a sudden something very odd happened.
A pigeon came across the floor and “presented” himself, right square in front of me. I watched him intently and saw that he was crippled, one of his feet was nothing more than a twisted claw. He had been profoundly injured in such a way, that he would never be the same. He was damaged, and yet somehow he was surviving, but even more, and he was thriving!
It was like experiencing a lightning bolt. God’s own light switch was being flipped.
I saw that pigeon, and I saw myself, and it was a moment of clarity, a shining grace. In the mega-hustle of 13.6 million people in London, and in the midst of my own profound mental crisis, I knew God’s caring touch and it gave me real grace, love, and goodness–far greater than all my sin and confusion. He was just letting me know that He was very, very close. (See Psalm 34:18.)
I had seen my damaged pigeon, completely oblivious to self-pity.
I started to call out to the Father out of my confusion. Within a few minutes, I found myself sitting on the top level of a double decker bus, with the driver aware of my problems and who specifically drove me to the place I was staying.
I was being cared for. Between a crippled pigeon and the dutiful ministrations of a bus driver, I’d finally found my hotel. (See Matthew 6:26.)
I have come to realize that this trip to England was not for me to see Big Ben, Parliament, or wander the academic schools of Cambridge University. Rather I was brought there to make contact with a certain pigeon, who was waiting to meet me and pass on vital instructions.
The Father shared things that I need to know. British castles and churches are beautiful and worth seeing but I must admit I’ve forgotten much. I hope I can return someday.
But on this trip, all I really needed to see was a crippled English pigeon who was just waiting to meet me.
What do you think of Christians taking antidepressants?
By Pastor John Piper, given on March 30, 2010
The following is an edited transcript of the audio.
What do you think of Christians taking antidepressants? I have been on them and have been accused of not relying on God.
That relates to an earlier question about how any physical or personal means that you use can signify that you’re not relying on God. So eating might be a failure to rely on God, because he might just fill your stomach by miracle, and you don’t have to eat. Or not sleeping would be a way of relying more on God, since you don’t have to have your psyche made stable by sleep at night. And so on.
God has ordained physical means. Aside from the ones that seem more natural, like food, there’s medicine: aspirin, Nyquil, etc. This water is helping my throat right now. [Sips it.] Was that sip a failure to rely on God?
Could be. “Just throw this away and rely on God! He will keep your throat moist. You don’t need to be drinking. You’re an idolater, Piper. You’re idolizing this because you’re depending on it.”
Well, the reason that’s not the case is because God has ordained for me to thank him for that. He created it and he made this body to need a lot of fluid. And it’s not a dishonor to him if I honor him through his gift.
Now the question is, “What medicines are like that or not like that?” Taking an aspirin?
My ophthalmologist told me about 4 years ago, “Take one baby aspirin a day and you will postpone cataracts or glaucoma or something.” He said, “I can see just the slightest little discoloration, and the way it works is that circulation helps.” So he told me to pop one of these little pills in my little vitamin thing. And I take it every day. And I just said, “Lord, whether I have eyes or not is totally dependent on you. But if you would like me to use this means, I would.”
My answer is that when you start working with peoples’ minds, you are in a very very tricky and difficult situation. But I think I want to say that, while nobody should hasten towards medication to alter their mental states—even as I say it I think of caffeine, right?—nevertheless, I know from reading history, like on William Cooper, and by dealing with many people over the years, that there are profoundly physical dimensions to our mental conditions.
Since that’s the case, physical means can be appropriate. For me it’s jogging. I produce stuff in my brain by jogging. But that might not work for somebody else, and they might be constantly unable to get on top of it emotionally. I just don’t want to rule out the possibility that there is a physical medication that just might, hopefully temporarily, enable them to get their equilibrium, process the truth, live out of the strength of the truth, honor God, and go off it.
When I preached on this one Easter Sunday a woman wrote me, thanking me that I took this approach. She said, “You just need to know that I live on these things, and I know what it was like 20 years ago and the horrors and the blackness of my life. And now I love Christ, I trust Christ, I love my husband, our marriage is preserved, and I’ll probably be on these till I’m dead.”
So I’m not in principle opposed. I just want to be very cautious in the way we use antidepressants.
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These are a list of things that people who have difficulties when they become high or manic have found helpful:
Try to get some sleep. Going without sleep has been shown to cause manic states and make them last longer.
Eat well. Don’t go without food or eat high energy food. Eat slowly.
Use relaxation techniques. Quiet prayer works well right now.
Stay in bed even though you feel compelled to do lots of things.
Don’t act on your ideas. In a few days time you may see things completely differently. Emailing friends now is dangerous. (I know).
Don’t buy anything expensive. Some people have found it helpful to give their credit cards/check book to friends. (I tried to buy a 7 foot potted tree in London, UK once, because it was lonely.)
Use medication, herbal remedies, or other things that slow you down and/or help you sleep. Think “speed bumps”.
Take relaxing (rather than high energy) exercise e.g. walking, swimming. This is a must-do.
Make a plan for each day and keep to it. Don’t plan to do too much.
Try to do things slowly rather than quickly. Talk and walk consciously slower than you feel driven to.
Challenge any grandiose ideas you might have about yourself. You must do this!
Reduce any pressures or stresses on you.
Cut out stimulants e.g. coffee, sugar, chocolate, fizzy drinks, alcohol. Some anti-depressants (e.g. the SSRIs like Prozac) can have stimulant-like effects – discuss this with your doctor and consider stopping them.
It may be helpful for you to make a plan about what to do before you get really elevated. You know yourself best, so build as many things into the plan that you feel will help you not do things you may later regret. It may be helpful to draw up a plan, and a list of ‘warning signs’, with a trusted friend or mental health professional at a time when you are not ‘high’, but that can be put into place as you or others notice your warning signs.
Some people believe that ‘getting manic’ is a response to not thinking about or facing things that might be quite frightening or depressing. It might be helpful to ‘get connected’ to such things, by talking and thinking about your life and some of the root causes of some unhappiness in your life. You could do this with a trusted friend or mental health professional.
Broken Believers 