Handling a Diagnosis of Tardive Dyskinesia

 

Tardive Dyskinesia (TD) is a condition of involuntary, repetitive movements of the jaw, tongue or other body movements. It frequently is a side effect of the long-term use of antipsychotic drugs used to treat schizophrenia or bipolar disorder. It is almost always permanent. I’ve been told Vitamin E might help a bit.  Benzodiazepines have also been used with mixed results on a short-term basis.

Some examples of these types of involuntary movements include:[3]

  • Grimacing
  • Tongue movements
  • Lip smacking
  • Lip puckering
  • Pursing of the lips
  • Excessive eye blinking

(Wikipedia)

I recently was diagnosed as having TD after the use of Zyprexa. My version is my lower jaw moves from side-to-side, unless I concentrate on not doing it. I quickly revert to this involuntary movement when I’m not aware of it. I recently saw a video of myself (with my family) and sure enough there I was, doing the ‘jaw thing.’ It was very obvious. It was also very embarrassing. (I have the ‘lithium jitters’— where my hands always shake, but TD is different.)

There are a couple of things I might mention:generics7

1) I’ve discovered that there is a real social isolation with this TD stuff. To be doing this in public is “not acceptable.” I have had people come up to me wanting to know what’s my problem. Since I can’t control the movement I just say, “It’s my meds— they affect me this way.” In a way it’s like wearing a neon sign saying, “I’m a fruit cake.” Having a mental illness is stigma enough, but the TD just puts a new edge on it.

2) As a natural introvert the isolation has only deepened. (I avoid crowds and most social engagements.) I guess if the truth be told, I’m uncomfortable when others look at me strangely or whisper to each other. My standard ‘paranoia level’ has taken a new twist. I feel like I’m always compelled to explain. I guess I’m embarrassed when others are embarrassed.

3) I settle myself down in my faith to cope. I know I’m not alone in this– the Lord Jesus is always with me. He holds me tight through all these twists and turns. Since I isolate myself so much, I savor the connection I have with a few friends who have become inured to my condition. Social media helps out— Facebook is a gift.

4) One of the things I try to remember are the issues of selfishness and pride. I keep reminding myself it’s not about me all the time. One of the significant areas mentally ill people deal with is self-absorbed thinking. It seems it comes with the illness.

5) I try to keep a sense of humor everyday. It breaks down the mental pain to tolerable levels. We can take ourselves too seriously sometimes. Be more patient with yourself.

I certainly ask that you remember me in prayer. I’m in ‘uncharted waters’ (it seems) and I sometimes feel all alone with my mental illness and all its tangents. I want good to come out of this. (An instantaneous healing would be o.k. too.)

 

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The Mangled Earrings of Joni Eareckson Tada

Joni's Mangled Earrings

Joni’s Mangled Earrings

I once admired the earrings my friend, Ann, was wearing – they were square, smooth, flat, and made of gold. When I remarked how beautiful they were, she replied, “They’re yours!” Ann then proceeded to take them off and put them on my ears! Humbled by her gift, the earrings became a treasure. Once while wearing them at work, one slipped off my ear – looked but couldn’t find it, so I wheeled to my office door to ask for help.

That’s when I felt a clunk-clunk-clunk. The earring was impaled on my tire; it was ruined! That weekend I took it to a jeweler and asked, “Sir, can you make this mangled earring look like the smooth one?” He rubbed his chin and said, “I can’t make that one look like this one… But I can make this one look like that one!” He then took a mallet and hammered the smooth, square earring into a mangled mess! At first I was horrified, but now I realize that the misshapen earrings reflect the light more beautifully than when they were ‘normal.’ It’s a lesson reflected in this timeless poem:

When God wants to drill a man,
And thrill a man, and skill a man,
When God wants to make a man
To play the noblest part,
When He yearns with all His heart
To build so great and bold a man
That all the world shall be amazed,
Then watch His methods, watch His ways!
How He ruthlessly perfects,
Whom He royally elects;
How He hammers him and hurts him,
And with mighty blows converts him
Into shapes and forms of clay
Which only God can understand
While man’s tortured heart is crying
And he lifts beseeching hands…
Yet God bends but never breaks
When man’s good He undertakes;
How He uses whom He chooses,
And with mighty power, infuses him,
With every act induces him to try
His splendor out,
God knows what He’s about.

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Visit Joni Eareckson Tada and Friends at http://www.joniandfriends.org/. Her bio can be found at http://www.joniandfriends.org/jonis-corner/jonis-bio/.

When you visit this site you will find a lot of helpful resources to some pretty useful materials on the disability needs on an international level. 

Emails, Facebook, Podcasts, TV Series, and great teachings are just part of the daily ministries available. Anyone interested in being discipled with a strong disability emphasis not always heard anywhere else really should visit.

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Mending Your Nets

The Ancient Tools of Net Mending (Still Used Today)

“And going on from there he saw two other brothers, James the son of Zebedee and John his brother, in the boat with Zebedee their father, mending their nets, and he called them.”

Matthew 4:21, ESV

“And immediately they left their nets and followed him.”

Mark 1:18

Fishing takes considerable effort. There is always something that needs to be done. To be honest, there is very little relationship between the 1st century commercial fisherman and our modern day guy on a new bass boat (with a big fridge for his beer.)

To mend nets was tedious but necessary. You would take your net and spread it on the ground in a open space. Every knot would be carefully examined. All holes would be repaired. Nothing was overlooked. Fishing nets were painstakingly maintained. Everyday, without fail.

Fish would school, and if your gear was right, and you were in a prime place, you could catch a lot. But at the same time, you could let hundreds of fish escape through a hole in your net. Each fish that escaped meant money lost.

Jesus walking along the beach surveyed the boats and crews. Since most of these guys had worked through the night, they were tired and maybe a bit “punchy.” Some had gotten somewhat lucky, while others had very little to show for working so hard. Most likely the different crews teased each other as they unloaded.

Jesus walked through the bunches of fisherman. He looked at their hauls to see what they had caught. But it wasn’t the catch He was looking at, it was the men. It was from these laboring fishermen that He would choose. These men were rough and tumble rednecks.

He stands and looks, and then commands. “You! Come and follow me, now.”

Now if you are looking for disciples– future apostles and leaders, the seashore is not the best place to recruit. They really have a rudimentary education. No theology, and just a meager understanding of Jewish ritual and religion. Essentially there was no time for them to think outside their occupation. Sure there just might be one, or two that possessed more, but that would be the exception.

But Jesus had no desire to interview them, and take the best of the lot. He didn’t have a Human Resources Department, there were no tests, and no forms that had to list references. He simply commanded, and those who understood followed. Only after they left it all did He get their names and addresses. I think that it is the same today.

Will we leave our boat, with the nets? Really, you can keep mending or you can follow Him– it’s your choice. Most of the time though, decisions have a tendency to be irrevocable. You have a moment, an instant of time to decide. Mending nets can be back-breaking and quite tedious. But following the Lord Jesus is an unknown. Many choose to keep mending. Others are launched into something new, and eternally significant.

The glaring truth is the necessity of obedience to Jesus’ command. There is no other voice we must hear. As a matter of fact, hearing (and really apprehending) is the only foundation we can trust to make our obedience true. You can keep mending your nets and preparing for another night on the water. That is always your prerogative. But if you decide to follow you will need to leave what you know behind. That is authentic discipleship.

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The Blessings of a Long Battle, Part 3

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From Jonathan Coe’s website at http://www.openheavensblog.com/. Thank you gracious brother! (I’m so glad you are my friend.)

As I look over the last two posts on the blessings of a long battle, I’m reminded of what the Apostle Paul said to the Corinthians about the importance of not being ignorant concerning the schemes of Satan (II Corinthians 2:11). After reading those posts, I realized a word of balance was needed in discussing the relationship of formulaic Christianity to spiritual practices lest the devil distort the truth to his advantage.

Both posts encouraged the believer to move beyond canned formulas to a restful trust in and radical dependence on Christ. A common formula for someone who finds themselves in a protracted struggle with sin, weakness, or some thorn in the flesh is “Read the Bible, pray, and attend church and that will solve your problem.”

These are wonderful spiritual practices but the problem is that people begin to trust in the formula more than the Person who can heal their inner leper. The formula can become a religious idol.

The biblical view of spiritual practices (prayer, Scripture study, church attendance, fellowship, fasting, meditation, and the sacraments) is that they are both avenues of renewal and bridges to intimacy with the Living God. They are sacramental; they are a means of grace.

Christ is the Vine; we are the branches. One of the primary ways that the branches stay connected to the Vine is through spiritual practices. That is how we abide in him and apart from abiding in him, we can do nothing.

This next part is crucial, and, if you only get one thing out of this post, this is it: when the believer gets frustrated enough to forsake impotent formulas, the devil’s primary agenda then is to get that person to forsake authentic, life–giving spiritual practices too.

That’s why the Christian should ask for wisdom every day so that he or she can tell the difference between the two. Satan is more than happy to allow us to forsake the false as long as we don’t replace it with the real.

It’s part of the human condition that, in our anger and frustration, we often throw out the wheat with the chaff. And a person who is involved in a long, difficult battle is going to need all the grace–filled spiritual practices they have time for!

I’m convinced that when the devil sees a believer, who is involved in a long battle, leave anemic formulas and begin to become engaged in regular, soul–nourishing spiritual practices, it fills him with uncontrollable rage. He will come to that Christian with many false voices in an effort to separate the branch from the Vine. Here’s a small sampling:

  • “ You tried this religious stuff before and you still have the same addiction/weakness/problem. What makes you think it’s going to work this time?”
  • “If you have your quiet time with God in the morning when you don’t feel like it, you’re being a phony. You should only do it when you feel like it.”
  • “If your quiet time with God becomes a regular thing, it will become a dead religious ritual. You don’t want to become legalistic. Keep things spontaneous. Just do it when your heart moves you to do it.”
  • “Regular spiritual practices aren’t the real you. You can find God in every day life without them in a way that fits your personality.”
  • “You’re a person of action not of contemplation. You get things done without all this navel–gazing and spiritual stuff.”

These are just a few plays out of the devil’s playbook. May God give us the discernment to recognize his voice and the wisdom to reject his counsel.

Reposted from http://www.openheavensblog.com/. Thank you Jonathan for your great teaching.

The Blessings of a Long Battle, part 2

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 “Do not fear the conflict, and do not flee from it; where there is no struggle, there is no virtue.”   John of Kronstadt

Part 1 of this post highlighted how God can bring good out of a long struggle with a sin, weakness, and/or problem by helping the Christian make the transition from putting their faith in formulas (e.g., “Do these three things and your problem will go away”) to a restful trust in Christ. Again, no sane Christian advocates habitual sin but the benefits of a protracted battle are numerous:

(1)  After a long battle, in making the transition from formulas to faith in God, a new brokenness develops in the believer. They’ve come to the end of themselves, run out of “self–effort fuel”, and are beginning to learn what Christ meant when he said, “…apart from me you can do nothing” (John 15:5).

(2) During a long battle with sin or weakness, there is a pattern of falling down and getting up. Proverbs 24:16 says that a righteous man falls seven times but keeps rising again. In this process many Christians report that a new intimacy has emerged in their relationship to God. They’ve come to know the God of mercy and compassion as never before because they’ve been repeatedly forgiven after their many stumbles.

(3) “He who is forgiven much loves much.” Along with a new intimacy, a greater love for God can also develop, after a long battle, because we’ve been forgiven over and over.

(4) And since God has extended his tender mercies to us over and over, we then can extend his mercy and compassion to others who have a protracted struggle with some issue. If our heart is right, a long battle can inoculate us from self–righteousness and judgmentalism in relation to others who fall over and over. How can we not extend to them the same grace that God extended to us?

In extending this grace to others, we may become a wounded healer to them. The healing we received from Christ during our struggle is graciously passed on those often struggling with similar issues. Healing emerges from your wounds just as resurrection emerges from death.

(5) After a war, the soldier of Christ often emerges battle–tested and wise to the schemes of the enemy. If a person has been pulled down into the dust 27 different ways by the devil, then, if he or she is paying attention, they’ve learned 27 strategies the enemy of our soul uses to try to destroy us.

In Twelve Step programs, one often hears the acronym H.A.L.T. mentioned in discussing relapse back into addiction. These four letters stand for hungry, angry, lonely, and tired and emphasize how these conditions create fertile soil for relapse.

If you frame the issue a different way, these are four strategies the devil uses to bring us back into bondage. How was this acronym learned? By people relapsing over and over when these conditions were present. Recovering people became wise through their failures in their long battle with addiction.

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Jonathan

posted from http://www.openheavensblog.com/

The Rigidity of Evil

I have a heart--but it is broken and crushed.

I have a heart–but it is broken and crushed.

Today I realized that I was sick and very tired of myself. It’s really not disgust, or even loathing. It’s more like a weariness, an exhaustion. I’ve never felt this way. In a strange way it intrigues me. Could this definite disenchantment mean something spiritual? Does it have value, or am I just feeling self-absorbed or conceited?

There is a real rigidity to evil. As I have seen it– sin hardens all who touch it, plain and simple. My growing immobility disturbs me, as I know I’m developing a “hardness of heart.” Atherosclerosis is a condition of a sick heart where arteries become blocked. It’s also known as “hardening of the heart, or arteries.” It is a patient killer, slowly and surely making hard deposits that block the flow of blood.

The Bible speaks about having a hard heart. It also uses the metaphor of fallow ground that must be plowed up. Jesus used the same image in His “Parable of the Sower” in Matthew 13.

“A sower went out to sow. 4 And as he sowed, some seeds fell along the path, and the birds came and devoured them. 5 Other seeds fell on rocky ground, where they did not have much soil, and immediately they sprang up, since they had no depth of soil, 6 but when the sun rose they were scorched. And since they had no root, they withered away. 7 Other seeds fell among thorns, and the thorns grew up and choked them. 8 Other seeds fell on good soil and produced grain.”

There are only four real options.

  • The first is seed that never arrives.
  • The second lands on hard stones.
  • The third possibility is landing on thorns and thistles.
  • Only the fourth flourishes.

    Heart of Stone Heart of Flesh

    The Battle of the Heart

The question I have is this, can the hard soil become soft, and can the good soil become overgrown with thistles? Is this a static, set experience? Or could it be far more fluid? I seem to move from one soil condition to another.

I have found that my own  heart drifts. Manic Depression is a mental illness where emotions fluctuate constantly. They gallivant around, floating here and than there. I maybe depressed and suicidal in the morning, and then I can be euphoric in the evening. It’s having the identity of a “wandering star.”

I want my heart to soften. I want to sit with Jesus and hear His words. I need Him to share what He is thinking about. Any sin I entertain has a hardening effect in my spiritual heart. This really scares me. *

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ybic, Bryan

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A Clumsy Christian

Test shots using Canon MT-24 flash, 7/2/2010

I am very clumsy. I have no claims on gracefulness to speak of. I seem to bungle and bump my way through life (to the amazed hilarity of my guardian angel), I walk into walls and stub my toes regularly.

Things others do elegantly I do bumbling. I have no rhythm and no grace, bumping into things and lurching myself through life’s obstacle course.

A lazy fly just flew by. He’s headed for the window for the hundredth time. His unskilled attempts to fly through it are thwarted by the screen. I finally have pity, and open it up. He earned it.

Christians are probably the clumsiest people on the planet. It seems we’ve one foot in the kingdom of God, and the other in this world. This isn’t an easy place to be. We don’t do either very well. We stub our toes a lot.

Even in the Church grace can be a foreign concept to many of us. God’s grace especially. I sometimes wonder, do we really grasp the wonder of this we so blithely profess to know?

Like that fly we try so hard and see no real results. Grace seems to elude us as we make another stab at being obedient. Why does it have to be so hard? Why can’t I make it work?

I’m so awkward. I barely understand the kingdom of God. And I still can’t fly through “screens.”

And still God’s grace meets us.

“For while we were still helpless, at the right time Christ died for the ungodly.For one will hardly die for a righteous man; though perhaps for the good man someone would dare even to die. But God demonstrates His own love toward us, in that while we were yet sinners, Christ died for us.”

Romans 5:6-8, NASB

your brother, Bryan

 

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