The Invisible Pain of Fibromyalgia

I posted this recently on my blog, Linda Kruschke’s Blog.

This post was inspired by a flare-up of my fibromyalgia. One of my fellow bloggers who has bipolar commented that the pain of bipolar is also a form of invisible pain. It occurred to me then that this is a perfect post for the encouragement of broken believers, many of whom struggle with some form of invisible pain, whether physical or mental pain.

flourish20

I didn’t want to write about fibromyalgia, but then I realized that sharing my struggles with this syndrome might help someone who also struggles with invisible pain.

When someone breaks a leg, suffers a severe burn, or is covered with cuts and bruises it is easy for people to see what is wrong and to sympathize. But the pain of fibromyalgia is invisible pain. From the outside, the person suffering from the pain of fibromyalgia looks just fine, and so people don’t understand what they are going through.

It is also an unpredictable pain with no easily determinable cause or trigger.

One day you feel just fine and you wake up the next day feeling like you got run over by a freight train. I’ve gone for months feeling fine, with very little pain, then suddenly every muscle in my body aches, and certain movements cause sharp pains in my legs, arms, and neck.

I try to figure out why.

I’ve had doctors give me conflicting theories of what causes this pain, and I have read conflicting theories as well. One doctor told me it is a chemical imbalance in the brain. Another has told me it is caused by what I eat, by an inability of my muscles to process sugar that results in toxins in my muscles.

Another suggested it is a symptom of Post-Traumatic Stress Disorder that stems from some early trauma. I had also read that there was a strong link between fibromyalgia and Epstein Bar Virus (or mononucleosis), which I had when I was in junior high. Finally, I have read that it is simply hereditary.

The pain of fibromyalgia is truly invisible.

There is no medical test that shows whether someone has fibromyalgia. There is a “tender point” test in which the doctor checks 18 designated tender points on the body and if 11 or more are tender to the touch a diagnosis of fibromyalgia can be made. But even that test is somewhat subjective.

All my life I have felt pain in circumstances where someone else thought I shouldn’t have felt pain. I can remember saying something hurt when I was a kid only to be told, “That didn’t hurt.” This summer I experienced pain from something that didn’t seem like it should hurt.

I was at my cousin’s house in Houston and his granddaughter was playing with three pine cones. She kept handing them to me to play with, but the sharp points started to really hurt my hands. I said I didn’t want to play anymore because it made my hands hurt. My sister looked at me and asked, “Does that really hurt?”

But I know that Jesus knows how I feel, and that gives me a great deal of comfort. Although the pain Jesus experienced when He was scourged, beaten, and crucified was quite visible, He experienced an invisible pain, too. He experienced the pain of having the sin of the world laid upon Him and of His Father turning away as He cried out:

“My God, My God, why have You forsaken me?”

Matthew 27:46 (NIV).

If you struggle under the weight of invisible pain, take heart that you are not alone. Christ understands your suffering and your pain. You also have fellow Christians who understand what you are going through. The apostle Peter provided for us who suffer a wonderful encouragement in his first epistle:

Humble yourselves, therefore, under God’s mighty hand, that he may lift you up in due time. Cast all your anxiety on him because he cares for you.

Be self-controlled and alert. Your enemy the devil prowls around like a roaring lion looking for someone to devour. Resist him, standing firm in the faith, because you know that your brothers throughout the world are undergoing the same kind of sufferings.

And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast. To him be the power for ever and ever. Amen. 

1 Peter 5:6-11 (NIV).

Satan would love to devour us in our pain.

He wants to make us fall and cease to be of use in God’s kingdom. But if we cling to Jesus, and cast all of our fears and anxiety on Him, He will help us to defeat Satan’s plans.

If you are struggling with invisible pain and feeling like you are at your wit’s end, leave me a comment and I would love to pray for you. It would be a blessing to me to be able to ask our Lord to strengthen you and give you peace and comfort so that you might be enabled to stand firm in your faith. Would you do the same for me?

My site is anotherfearlessyear.net, Please visit me.

 

I am Jonah

1 “But Jonah was greatly displeased and became angry. 2 He prayed to the LORD, “O LORD, is this not what I said when I was still at home? That is why I was so quick to flee to Tarshish. I knew that you are a gracious and compassionate God, slow to anger and abounding in love, a God who relents from sending calamity. 3 Now, O LORD, take away my life, for it is better for me to die than to live.”

 4 But the LORD replied, “Have you any right to be angry?”

Jonah 4:1-4, NIV 

Jonah is the very essence of the modern Christian who prefers God to be just like them (only more so.)  Just like Jonah we can be:

  1. unbelieving,
  2. unaccepting and
  3. unforgiving.

When you mix the three, (in a kind of “Jonah smoothie”) you will have something quite religious– but very toxic.  A toxicity that normally should require protective clothing and a quarantine.

Jonah has a sense of who God really is.  But, he disagrees.  In his eyes, God is way too excessive, way too elaborate in His love.  He makes way too many possibilities for forgiveness.  It drives him nuts, to serve a God that is way too liberal with His love.  It seems to push Jonah to try to readjust the love of God on his own.

In the eyes of Mr. Jonah, he simply must modify the “way of salvation.”  In his way of thinking, he can’t let God, be wholly God.  Jonah simply must step in, and dial back the real tendency of God to venture into His excessive and foolish love.  He must be thinking that what God is doing is way too outrageous, and far too far for human reasoning.

Amazingly, Jonah knows God deeply.  He knows, and he is afflicted by the grace that God has for these Ninevites.  Jonah doesn’t get vague, rather he gets specific.  He becomes more aware.  Verse 2 states Jonah’s deep awareness that God is simply too good for people, He is far too rich and generous with the behavior of people who live way too loose.

Since God seems so excessive we feel we must adjust Him.

It seems we must work to make Him more acceptable, and to redefine Him into a more focused kind of religious faith.  Something that makes sense to us His followers.  Something in the way the World perceives Him.  It so seems that this is a job that almost every believer jumps at. (I vote to send God to “rehab.”) :-)

But the LORD replied, “Have you any right to be angry?”  The Lord speaks specifically to Jonah.  He asks a question, which is a very good idea, when confronting foolish thinking.  “Have you any right?”  This question reverberates and echos through the corridors inside our hearts.  It seems our right doesn’t extend that far.  Being “angry” with God (and the way He does things,) is never an acceptable way of thinking.

Simply put, you have no right.  You have nothing.  There isn’t any allowance or prerogative given, that allows you to alter and adjust the way God wants His reputation and character to be made public.  Sorry, you can’t “airbrush” Him to meet the perceived ideas of the mass population.  He will not allow you to “photoshop” His face or presence, to make His love more presentable.

God Keeps Your Tears in a Bottle

by Linda L. Kruschke

I have cried many tears in my life.

If you have never cried, you can stop reading right now. But if you have shed tears for yourself or for others, or if like me you have shed some without even knowing why or where they came from, take heart. God knows the tears you have shed. Psalm 56:8 says so. Here are several translations of that wonderful verse:

Record my lament;
       list my tears on your scroll —
       are they not in your record? (NIV)

You have taken account of my wanderings;
         Put my tears in Your bottle
         Are they not in Your book? (NASB)

You keep track of all my sorrows.
      You have collected all my tears in your bottle.
      You have recorded each one in your book. (NLT)

Write down my poem of sadness.
      List my tears on your scroll.
      Aren’t you making a record of them? (NIRV)

I love the image of God keeping all my tears in a bottle. I can envision shelves filled with bottles in Heaven, each with a name on it, and an accompanying scroll documenting every tear and lament. Or maybe it is just one huge bottle with all of our tears mingled together.

Today tears are being shed in dark rooms where children are being held as sex slaves, in Africa as people remain homeless and without food and water, in the United States as many remain jobless, in hospitals and on the streets where the mentally ill are forgotten, in homes around the world where people are spiritually lost and have no hope.

We live in a fallen and painful world.

Tragedies happen and humans are not always kind to one another. And so tears are shed. It is hard to fathom God collecting every single one, but He does. He notices and He records each tear and each lament.

The more I think about it, I like the idea that God has mingled all our tears together. The Psalm does refer to God’s “bottle” in the singular. And if He has collected every tear in that bottle, then mingled with our own are the tears of Jesus. In John 11, the apostle records this event: “Jesus wept.” (John 11:35.)

In this passage, Jesus weeps when He learns of the death of Lazarus.

When they see Him weeping, the people say “See how he loved him!” John 11:36. But I don’t think Jesus was weeping because Lazarus was dead – He knew He was going to raise Lazarus from the dead. Rather, I think He wept because of the compassion He felt for humanity as we weep over our own tragedies and losses. It is us that He loved so much that it brought Him to tears.

So if you weep today, remember that God is collecting your tears in His bottle, and mixing them with the tears of our dear Savior. Not only that, but God will deliver you from the final trial that lead to tears by redeeming your soul.

Psalm 116:8-9 (NIV).

Linda’s blog is at anotherfearlessyear.net  Please check out all she has to say and listen to her heart.
You may copy and use or distribute this post freely in its entirety please.
We’re a member.

p

Don’t Waste Your Sorrows

“You have given me many troubles and bad times, but you will give me life again. When I am almost dead, You will keep me alive.”

Psalm 71:20, NCV

“He was despised and rejected by men,
    a man of sorrows and acquainted with grief;”

Isaiah 53:3, ESV

Everyone hurts sometimes. We all will face our special sorrows. But there are times when our pain pounds us intensely, and it can get really bad. The darkness rolls in on our souls like a caustic fog. We might devastatingly discover that there are things that are worse than terrible.

I have never spoken out like this, but my wife and I had a daughter who died— she was stillborn. She was doing great, up to a week before her due date. We knew that in seven days, we would be able to see her– face-to-face.

Elizabeth Grace Lowe died shortly after birth from strangulation. It was a sudden and unexpected tragedy that left us devastated.

We were completely undone. 

“For the Lord will not reject forever,
For if He causes grief,
Then He will have compassion
According to His abundant lovingkindness.
For He does not afflict willingly
Or grieve the sons of men.”

Lamentations 3:32-33, NASB

There is pain, but there are also promises.

There can be brutal sadness, but there are also Psalms. There is a blessing for all those who grieve. This topic deserves far more attention than this simple post. (If you’re in the thick of things, I’m trusting the Holy Spirit will help you to your next step.)

There can be such sorrow in this life.

Much more than the human heart can possibly contain. But our Savior has a title (one of many.) He is the “Man of Sorrows.” He is the one who is “on point.” He leads us through such intense hostility. He is there when the switch is flipped and it becomes instantly dark. We can’t, won’t, and will not leave you to face your pain alone.

There are a few things that I want to communicate to you.

These have come out of great darkness. I have tried awfully hard to be a disciple, even through the worst of it. They may be right, wrong or just okay, I don’t really know…

  1. God takes the full blame for our pain and sorrow. He doesn’t shift the blame or deny His presence in our sufferings. Sometimes you need to adjust your theology. Maybe it’s hard to trust Him right now–that’s more than understandable. In eternity, I believe, it’ll make perfect sense.
  2. Jesus has fully shared our sorrow. All that you are feeling right now, He feels. If you feel you are at a minus 10, then He does as well. As you suffer, He is your shadow. He knows.
  3. Nothing is ever wasted. We really shouldn’t treat these moments of sorrow as a waste. Have you ever wondered at Jesus’ ‘economy’ after the 5000 were fed?  He assigns value to the leftovers. The disciples pick up their baskets and collect everything again. Nothing will go to waste. Nothing.
  4. This pain, this sorrow is the intensive crash course in becoming a person of mercy. You now will always walk with a limp. At times the scars will be quite visible to those who can really see. This will become forever a healed wound (but a wound nevertheless.) It helps to seek out others who have walked this same path. I don’t think I will ever fully trust a person who doesn’t walk with some kind of limp.
  5. You will need (but maybe not accept) the transformation of your suffering into glory. This will take some time, and it almost feels like your not progressing at all. I encourage you to re-think each of these simple points. The Holy Spirit may be working, perhaps behind the scenes.
  6. Finally remember this: God is not a monster, stomping on us like a boy crushes ants. He has carried all of our pain and illness. He clearly comes alongside every suffering believer.

It is Satan who would suggest to you that God is a Celestial Menace, not worthy of our love. I will be very blunt with you, that idea has to be implicitly rejected. Its origins are satanic.

“The moment an ill can be patiently handled, it is disarmed of its poison, though not of its pain.”

    Henry Ward Beecher

“The LORD is close to the brokenhearted; he rescues those whose spirits are crushed.”

Psalm 147:3, NLT