Handling a Diagnosis of Tardive Dyskinesia

 

Tardive Dyskinesia (TD) is a condition of involuntary, repetitive movements of the jaw, tongue or other body movements. It frequently is a side effect of the long-term use of antipsychotic drugs used to treat schizophrenia or bipolar disorder. It is almost always permanent. I’ve been told Vitamin E might help a bit.  Benzodiazepines have also been used with mixed results on a short-term basis.

Some examples of these types of involuntary movements include:[3]

  • Grimacing
  • Tongue movements
  • Lip smacking
  • Lip puckering
  • Pursing of the lips
  • Excessive eye blinking

(Wikipedia)

I recently was diagnosed as having TD after the use of Zyprexa. My version is my lower jaw moves from side-to-side, unless I concentrate on not doing it. I quickly revert to this involuntary movement when I’m not aware of it. I recently saw a video of myself (with my family) and sure enough there I was, doing the ‘jaw thing.’ It was very obvious. It was also very embarrassing. (I have the ‘lithium jitters’— where my hands always shake, but TD is different.)

There are a couple of things I might mention:generics7

1) I’ve discovered that there is a real social isolation with this TD stuff. To be doing this in public is “not acceptable.” I have had people come up to me wanting to know what’s my problem. Since I can’t control the movement I just say, “It’s my meds— they affect me this way.” In a way it’s like wearing a neon sign saying, “I’m a fruit cake.” Having a mental illness is stigma enough, but the TD just puts a new edge on it.

2) As a natural introvert the isolation has only deepened. (I avoid crowds and most social engagements.) I guess if the truth be told, I’m uncomfortable when others look at me strangely or whisper to each other. My standard ‘paranoia level’ has taken a new twist. I feel like I’m always compelled to explain. I guess I’m embarrassed when others are embarrassed.

3) I settle myself down in my faith to cope. I know I’m not alone in this– the Lord Jesus is always with me. He holds me tight through all these twists and turns. Since I isolate myself so much, I savor the connection I have with a few friends who have become inured to my condition. Social media helps out— Facebook is a gift.

4) One of the things I try to remember are the issues of selfishness and pride. I keep reminding myself it’s not about me all the time. One of the significant areas mentally ill people deal with is self-absorbed thinking. It seems it comes with the illness.

5) I try to keep a sense of humor everyday. It breaks down the mental pain to tolerable levels. We can take ourselves too seriously sometimes. Be more patient with yourself.

I certainly ask that you remember me in prayer. I’m in ‘uncharted waters’ (it seems) and I sometimes feel all alone with my mental illness and all its tangents. I want good to come out of this. (An instantaneous healing would be o.k. too.)

 

bry-signat (1)

cropped-christiangraffiti1.jpg

Without a Wound? [True Ministry]

angel6

The subject of “the pool at Bethesda” alludes to the following excerpt from the Thorton Wilder play, “The Angel that Troubled the Waters”.The play is based on the biblical verses of John 5:1-4, but it changes the end of the parable. I first encountered this excerpt within the book “Abba’s Child: The Cry of the Heart for Intimate Belonging“, by Brennan Manning.

The play tells of a physician who comes periodically to the pool of Bethesda, hoping to be the first in the water and healed of his melancholy when the angel appears and troubles the water. Everybody at the pool also hopes to be the first in the water and thereby healed of his malady.

An angel appears and blocks the physician at the moment he is ready to step into the pool and be healed.

Angel: “Draw back, physician, this moment is not for you.”angel1

Physician: “Angelic visitor, I pray thee, listen to my prayer.

Angel: “This healing is not for you.”

Physician: “Surely, surely, the angels are wise. Surely, O Prince, you are not deceived by my apparent wholeness. Your eyes can see the nets in which my wings are caught; the sin into which all my endeavors sink half-performed cannot be concealed from you.”

Angel: “I know.”

……………Interlude………………

Physician: “Oh, in such an hour was I born, and doubly fearful to me is the flaw in my heart. Must I drag my shame, Prince and Singer, all my days more bowed than my neighbor?”

Angel: Without your wound where would your power be? It is your very sadness that makes your low voice tremble into the hearts of men. The very angels themselves cannot persuade the wretched and blundering children on earth as can one human being broken on the wheels of living. In Love’s service only the wounded soldiers can serve. Draw back.”

Later, the person who enters the pool first and was healed rejoices in his good fortune then turns to the physician before leaving and said:

“But come with me first, an hour only, to my home. My son is lost in dark thoughts. I — I do not understand him, and only you have ever lifted his mood. Only an hour . . . my daughter, since her child has died, sits in the shadow. She will not listen to us but she will listen to you.”

flourish1

For me, this story has made an incredible difference and, because the message of this excerpt—“Without your wound where would your power be?“—carries so much meaning for me. As this has taught me that its through my weakness I can see others like Jesus does.  I believe, for me, it is slowly becoming my whole foundation for ministry.

&

ybic, Bryan

 

(

When Our Troubles Help Us Find Jesus

Jesus loves his lambs.

“When this man heard that Jesus had arrived in Galilee from Judea, he went to him and begged him to come and heal his son, who was close to death”.

John 4:47

Without his troubles, it would be highly improbable that this man would go find Jesus. His son is very ill, and close to dying. Undoubtedly the father has tried all of the conventional methods but to no avail. Somebody has mentioned that Jesus has just arrived in Galilee, and that remains the best option. He will find Jesus, the healer, and bring Jesus to his son.

Very often this is how it works for us. Life is good and there is no reason for us to go to Jesus. We’re content and reasonably happy with how things are going. But this man– a royal official, is desperate. Life has detonated in his face and he is completely undone. He is in a good place, although he can’t see it.

Believe it or not, our trials and troubles are often wonderful visitors.

Without these we would not look for Jesus. They are frightening and they are difficult, but they are necessary for us. Over the years, it is likely that this man has been insulated and protected from life’s difficulties. There has been nothing to cross him as his life unfolded. He believes that he has an immunity to suffering.

This official desperately seeks out Jesus. His son is dying. He must locate Jesus and bring Him back. He is frightened and frantic. Jesus is his only hope. But even this is not automatic.

“God never withholds from His child that which His love and wisdom call good. God’s refusals are always merciful- “severe mercies” at times, but mercies all the same. God never denies us our heart’s desire except to give us something better”

Elizabeth Elliot

The answer is not what this man was looking for. He wanted Jesus to return to Capernaum with him, but instead Jesus decides to stay right where He is. Instead He speaks, and the boy is healed, long-distance. As we seek the Lord’s grace, forgiveness and healing into our own lives, and our family, let us let the Lord be the Lord. Let Him decide how to do it. This man simply trusted, “The man took Jesus at his word and departed.” But he would never, ever be the same.

For those of us afflicted, with either physical or mental disabilities, we discover Jesus who leads us into a special place. We may find ourselves serving others in a new way that our illnesses have opened.

“All our difficulties are only platforms for the manifestations of His grace, power and love.”  

Hudson Taylor

 

cropped-cropped-christiangraffiti1.jpg

The Mangled Earrings of Joni Eareckson Tada

Joni's Mangled Earrings

Joni’s Mangled Earrings

I once admired the earrings my friend, Ann, was wearing – they were square, smooth, flat, and made of gold. When I remarked how beautiful they were, she replied, “They’re yours!” Ann then proceeded to take them off and put them on my ears! Humbled by her gift, the earrings became a treasure. Once while wearing them at work, one slipped off my ear – looked but couldn’t find it, so I wheeled to my office door to ask for help.

That’s when I felt a clunk-clunk-clunk. The earring was impaled on my tire; it was ruined! That weekend I took it to a jeweler and asked, “Sir, can you make this mangled earring look like the smooth one?” He rubbed his chin and said, “I can’t make that one look like this one… But I can make this one look like that one!” He then took a mallet and hammered the smooth, square earring into a mangled mess! At first I was horrified, but now I realize that the misshapen earrings reflect the light more beautifully than when they were ‘normal.’ It’s a lesson reflected in this timeless poem:

When God wants to drill a man,
And thrill a man, and skill a man,
When God wants to make a man
To play the noblest part,
When He yearns with all His heart
To build so great and bold a man
That all the world shall be amazed,
Then watch His methods, watch His ways!
How He ruthlessly perfects,
Whom He royally elects;
How He hammers him and hurts him,
And with mighty blows converts him
Into shapes and forms of clay
Which only God can understand
While man’s tortured heart is crying
And he lifts beseeching hands…
Yet God bends but never breaks
When man’s good He undertakes;
How He uses whom He chooses,
And with mighty power, infuses him,
With every act induces him to try
His splendor out,
God knows what He’s about.

joni-signature

flourish2

Visit Joni Eareckson Tada and Friends at http://www.joniandfriends.org/. Her bio can be found at http://www.joniandfriends.org/jonis-corner/jonis-bio/.

When you visit this site you will find a lot of helpful resources to some pretty useful materials on the disability needs on an international level. 

Emails, Facebook, Podcasts, TV Series, and great teachings are just part of the daily ministries available. Anyone interested in being discipled with a strong disability emphasis not always heard anywhere else really should visit.

cropped-christiangraffiti1 (2)

The Blessings of a Long Battle, Part 3

boxing2

From Jonathan Coe’s website at http://www.openheavensblog.com/. Thank you gracious brother! (I’m so glad you are my friend.)

As I look over the last two posts on the blessings of a long battle, I’m reminded of what the Apostle Paul said to the Corinthians about the importance of not being ignorant concerning the schemes of Satan (II Corinthians 2:11). After reading those posts, I realized a word of balance was needed in discussing the relationship of formulaic Christianity to spiritual practices lest the devil distort the truth to his advantage.

Both posts encouraged the believer to move beyond canned formulas to a restful trust in and radical dependence on Christ. A common formula for someone who finds themselves in a protracted struggle with sin, weakness, or some thorn in the flesh is “Read the Bible, pray, and attend church and that will solve your problem.”

These are wonderful spiritual practices but the problem is that people begin to trust in the formula more than the Person who can heal their inner leper. The formula can become a religious idol.

The biblical view of spiritual practices (prayer, Scripture study, church attendance, fellowship, fasting, meditation, and the sacraments) is that they are both avenues of renewal and bridges to intimacy with the Living God. They are sacramental; they are a means of grace.

Christ is the Vine; we are the branches. One of the primary ways that the branches stay connected to the Vine is through spiritual practices. That is how we abide in him and apart from abiding in him, we can do nothing.

This next part is crucial, and, if you only get one thing out of this post, this is it: when the believer gets frustrated enough to forsake impotent formulas, the devil’s primary agenda then is to get that person to forsake authentic, life–giving spiritual practices too.

That’s why the Christian should ask for wisdom every day so that he or she can tell the difference between the two. Satan is more than happy to allow us to forsake the false as long as we don’t replace it with the real.

It’s part of the human condition that, in our anger and frustration, we often throw out the wheat with the chaff. And a person who is involved in a long, difficult battle is going to need all the grace–filled spiritual practices they have time for!

I’m convinced that when the devil sees a believer, who is involved in a long battle, leave anemic formulas and begin to become engaged in regular, soul–nourishing spiritual practices, it fills him with uncontrollable rage. He will come to that Christian with many false voices in an effort to separate the branch from the Vine. Here’s a small sampling:

  • “ You tried this religious stuff before and you still have the same addiction/weakness/problem. What makes you think it’s going to work this time?”
  • “If you have your quiet time with God in the morning when you don’t feel like it, you’re being a phony. You should only do it when you feel like it.”
  • “If your quiet time with God becomes a regular thing, it will become a dead religious ritual. You don’t want to become legalistic. Keep things spontaneous. Just do it when your heart moves you to do it.”
  • “Regular spiritual practices aren’t the real you. You can find God in every day life without them in a way that fits your personality.”
  • “You’re a person of action not of contemplation. You get things done without all this navel–gazing and spiritual stuff.”

These are just a few plays out of the devil’s playbook. May God give us the discernment to recognize his voice and the wisdom to reject his counsel.

Reposted from http://www.openheavensblog.com/. Thank you Jonathan for your great teaching.

The Rigidity of Evil

I have a heart--but it is broken and crushed.

I have a heart–but it is broken and crushed.

Today I realized that I was sick and very tired of myself. It’s really not disgust, or even loathing. It’s more like a weariness, an exhaustion. I’ve never felt this way. In a strange way it intrigues me. Could this definite disenchantment mean something spiritual? Does it have value, or am I just feeling self-absorbed or conceited?

There is a real rigidity to evil. As I have seen it– sin hardens all who touch it, plain and simple. My growing immobility disturbs me, as I know I’m developing a “hardness of heart.” Atherosclerosis is a condition of a sick heart where arteries become blocked. It’s also known as “hardening of the heart, or arteries.” It is a patient killer, slowly and surely making hard deposits that block the flow of blood.

The Bible speaks about having a hard heart. It also uses the metaphor of fallow ground that must be plowed up. Jesus used the same image in His “Parable of the Sower” in Matthew 13.

“A sower went out to sow. 4 And as he sowed, some seeds fell along the path, and the birds came and devoured them. 5 Other seeds fell on rocky ground, where they did not have much soil, and immediately they sprang up, since they had no depth of soil, 6 but when the sun rose they were scorched. And since they had no root, they withered away. 7 Other seeds fell among thorns, and the thorns grew up and choked them. 8 Other seeds fell on good soil and produced grain.”

There are only four real options.

  • The first is seed that never arrives.
  • The second lands on hard stones.
  • The third possibility is landing on thorns and thistles.
  • Only the fourth flourishes.

    Heart of Stone Heart of Flesh

    The Battle of the Heart

The question I have is this, can the hard soil become soft, and can the good soil become overgrown with thistles? Is this a static, set experience? Or could it be far more fluid? I seem to move from one soil condition to another.

I have found that my own  heart drifts. Manic Depression is a mental illness where emotions fluctuate constantly. They gallivant around, floating here and than there. I maybe depressed and suicidal in the morning, and then I can be euphoric in the evening. It’s having the identity of a “wandering star.”

I want my heart to soften. I want to sit with Jesus and hear His words. I need Him to share what He is thinking about. Any sin I entertain has a hardening effect in my spiritual heart. This really scares me. *

*

ybic, Bryan

*

A Clumsy Christian

Test shots using Canon MT-24 flash, 7/2/2010

I am very clumsy. I have no claims on gracefulness to speak of. I seem to bungle and bump my way through life (to the amazed hilarity of my guardian angel), I walk into walls and stub my toes regularly.

Things others do elegantly I do bumbling. I have no rhythm and no grace, bumping into things and lurching myself through life’s obstacle course.

A lazy fly just flew by. He’s headed for the window for the hundredth time. His unskilled attempts to fly through it are thwarted by the screen. I finally have pity, and open it up. He earned it.

Christians are probably the clumsiest people on the planet. It seems we’ve one foot in the kingdom of God, and the other in this world. This isn’t an easy place to be. We don’t do either very well. We stub our toes a lot.

Even in the Church grace can be a foreign concept to many of us. God’s grace especially. I sometimes wonder, do we really grasp the wonder of this we so blithely profess to know?

Like that fly we try so hard and see no real results. Grace seems to elude us as we make another stab at being obedient. Why does it have to be so hard? Why can’t I make it work?

I’m so awkward. I barely understand the kingdom of God. And I still can’t fly through “screens.”

And still God’s grace meets us.

“For while we were still helpless, at the right time Christ died for the ungodly.For one will hardly die for a righteous man; though perhaps for the good man someone would dare even to die. But God demonstrates His own love toward us, in that while we were yet sinners, Christ died for us.”

Romans 5:6-8, NASB

your brother, Bryan

 

cropped-christiangraffiti1-2