Caregivers: Improving Your Serve

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One of the weightiest issues of caring for a mentally ill spouse, child, or friend, is that it is so phenomenally relentless.  The disease is so unpredictable, in its intensity and its spontaneity.  You think you have the situation in hand, and it breaks out somewhere else, and often in public and causing major problems.  This is wearing on anyone, including the Christian believer. And sometimes that can even make it more challenging.

You will need a support network, if you’re going to be a caregiver.  This support is received in three different ways.

First, emotional support.  Without someone who can listen and give words that encourage you, you’ll grow in resentment and frustration with your particular “lot”.

Second, I would suggest physical support.  You will need someone to help you make sure the practical issues are met.  (washing the car, fixing the shower, etc.) My wife as a caregiver has had to do things that she would normally wouldn’t be called on to do (fix the stove, do the taxes, etc.) because of my illness.

Third, spiritual support.  It has three concentrations. Worship, prayer, and fellowship.  These three have obvious effects on the caregiver.  Just a word to the wise–when you pray you are going into it as two people (as well as for yourself).  You must maintain and strengthen yourself and for the person you are serving.  I think this is critical to your relationship.  Try to see challenges, not obstacles. Don’t forget the power of a worshipping heart or the warmness of good Christian fellowship.

God gives special grace to the caretaker.  My advice is to take it, and then use it.  Draw upon Jesus who is your caregiver.  Present your afflicted one to Him.  Be supernatural in the mundane.  The story of the paralyzed man on his cot being brought into Jesus’ presence by his friends fascinates me.  It has many parallels for you to be a good caregiver.

“And behold, some men were bringing on a bed a man who was paralyzed, and they were seeking to bring him in and lay him before Jesus,”

Luke 5:18, ESV

My last word of advice is that you don’t be self-critical or feel guilty.  Remember, it is your friend or family member who is the sick one.  Don’t get consumed by your responsibilities.  Don’t fall in the trap of judging yourself by how well you do or don’t do as a caregiver.  Remember, you are not performing for others, but for an audience of One, who sees all.

Educate yourself, use the internet to track down information.  If I can help you further, please feel free to contact me.  I’m not a rocket scientist but if I can encourage you I will.   May the Holy Spirit touch your heart. You are going to need it.

 

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Tourette Syndrome [Awareness]

To understand and name something is often half the battle.  An understanding of Tourette Syndrome can help us to serve people who painfully struggle with this particular challenge.

What is Tourette syndrome?

Tourette syndrome (TS) is a neurological disorder characterized by repetitive, stereotyped, involuntary movements and vocalizations called tics. The disorder is named for Dr. Georges Gilles de la Tourette, the pioneering French neurologist who in 1885 first described the condition in an 86-year-old French noblewoman.

The early symptoms of TS are almost always noticed first in childhood, with the average onset between the ages of 7 and 10 years. TS occurs in people from all ethnic groups; males are affected about three to four times more often than females.

It is estimated that 200,000 Americans have the most severe form of TS, and as many as one in 100 exhibit milder and less complex symptoms such as chronic motor or vocal tics or transient tics of childhood. Although TS can be a chronic condition with symptoms lasting a lifetime, most people with the condition experience their worst symptoms in their early teens, with improvement occurring in the late teens and continuing into adulthood.

What are the symptoms?

Tics are classified as either simple or complex. Simple motor tics are sudden, brief, repetitive movements that involve a limited number of muscle groups. Some of the more common simple tics include eye blinking and other vision irregularities, facial grimacing, shoulder shrugging, and head or shoulder jerking.  Simple vocalizations might include repetitive throat-clearing, sniffing, or grunting sounds.

Complex tics are distinct, coordinated patterns of movements involving several muscle groups. Complex motor tics might include facial grimacing combined with a head twist and a shoulder shrug. Other complex motor tics may actually appear purposeful, including sniffing or touching objects, hopping, jumping, bending, or twisting. Simple vocal tics may include throat-clearing, sniffing/snorting, grunting, or barking. More complex vocal tics include words or phrases.

Perhaps the most dramatic and disabling tics include motor movements that result in self-harm such as punching oneself in the face or vocal tics including coprolalia (uttering swear words) or echolalia (repeating the words or phrases of others). Some tics are preceded by an urge or sensation in the affected muscle group, commonly called a premonitory urge. Some with TS will describe a need to complete a tic in a certain way or a certain number of times in order to relieve the urge or decrease the sensation.

Tics are often worse with excitement or anxiety and better during calm, focused activities. Certain physical experiences can trigger or worsen tics, for example tight collars may trigger neck tics, or hearing another person sniff or throat-clear may trigger similar sounds. Tics do not go away during sleep but are often significantly diminished.

What is the course of TS?

Tics come and go over time, varying in type, frequency, location, and severity.  The first symptoms usually occur in the head and neck area and may progress to include muscles of the trunk and extremities. Motor tics generally precede the development of vocal tics and simple tics often precede complex tics.  Most patients experience peak tic severity before the mid-teen years with improvement for the majority of patients in the late teen years and early adulthood. Approximately 10 percent of those affected have a progressive or disabling course that lasts into adulthood.

Can people with TS control their tics?

Although the symptoms of TS are involuntary, some people can sometimes suppress, camouflage, or otherwise manage their tics in an effort to minimize their impact on functioning. However, people with TS often report a substantial buildup in tension when suppressing their tics to the point where they feel that the tic must be expressed. Tics in response to an environmental trigger can appear to be voluntary or purposeful but are not.

What causes TS?

Although the cause of TS is unknown, current research points to abnormalities in certain brain regions (including the basal ganglia, frontal lobes, and cortex), the circuits that interconnect these regions, and the neurotransmitters (dopamine, serotonin, and norepinephrine) responsible for communication among nerve cells. Given the often complex presentation of TS, the cause of the disorder is likely to be equally complex.

What disorders are associated with TS?

Many with TS experience additional neurobehavioral problems including inattention; hyperactivity and impulsivity (attention deficit hyperactivity disorder—ADHD) and related problems with reading, writing, and arithmetic; and obsessive-compulsive symptoms such as intrusive thoughts/worries and repetitive behaviors. For example, worries about dirt and germs may be associated with repetitive hand-washing, and concerns about bad things happening may be associated with ritualistic behaviors such as counting, repeating, or ordering and arranging.

People with TS have also reported problems with depression or anxiety disorders, as well as other difficulties with living, that may or may not be directly related to TS.  Given the range of potential complications, people with TS are best served by receiving medical care that provides a comprehensive treatment plan.

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Source for this post: http://www.ninds.nih.gov/disorders/tourette/detail_tourette.htm#147223231

Great site at: http://tsa-usa.org/

I Must Do What He Has Taught Me

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“If I, your Lord and Teacher, have washed your feet, you also should wash each other’s feet.”

John 13:14, NCV

Jesus sets out a lot of things and lays them out on the table.  We gather around to get a closer look.  A significant issue is this deal about  becoming a servant.  It stipulates a certain fact that drives us all ‘very crazy’.  Jesus has stated so much, but now we’re being pushed to the edge.  Afterall, there is only so much we can put up with.

But Jesus fully intends to open up this subject, for us to see.  The idea is beyond bizarre, He is saying things which are very strange.  He dictates that we are to start acting like the lowest slaves in our homes.  These slaves have the gross task of cleaning everyone’s feet.  This is the sole work of the ‘bottom scum’.  This is now the ready place for His followers.

There are many ways we can wash feet in the 21st Century.  But the two stages involve #1, stooping down low, and #2, providing beneficial service to our brother on-the-chair.  These are the two essential thrusts to our new life of servanthood. It is only Biblical servanthood if we connect with both stages.

Jesus sees all of this, this washing business, as something He has done first-hand.  He certainly hasn’t ‘commanded’ us without doing it Himself first.  He leads us, and just doesn’t direct us.  Many leaders have gotten confused on this issue.  But our Lord ‘excels’.  He models it, and we begin to understand its glory.

In essence, He states, “Look at Me, watch how I do this.  And then you must copy Me’.  We believers are always to be looking, spiritually observant.  We see our example cleaning dirty feet, and we find ourselves in that same role.  Understanding the disgusting concept of feet-washing was very close to the level of wiping someone elses butt.  Extremely disagreeably, with zero upside to it.  It would’ve been crude, gross and demeaning.

Jesus is disciplining us, and we look unswerving to Him.  We will follow and not look back.  We are an army made up exclusively of servants.  We will take the lowest spot, and we will love everyone we come in contact with.

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