Tag: pain

The Invisible Pain of Fibromyalgia

I posted this recently on my blog, Linda Kruschke’s Blog.

This post was inspired by a flare-up of my fibromyalgia. One of my fellow bloggers who has bipolar commented that the pain of bipolar is also a form of invisible pain. It occurred to me then that this is a perfect post for the encouragement of broken believers, many of whom struggle with some form of invisible pain, whether physical or mental pain.

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I didn’t want to write about fibromyalgia, but then I realized that sharing my struggles with this syndrome might help someone who also struggles with invisible pain.

When someone breaks a leg, suffers a severe burn, or is covered with cuts and bruises it is easy for people to see what is wrong and to sympathize. But the pain of fibromyalgia is invisible pain. From the outside, the person suffering from the pain of fibromyalgia looks just fine, and so people don’t understand what they are going through.

It is also an unpredictable pain with no easily determinable cause or trigger.

One day you feel just fine and you wake up the next day feeling like you got run over by a freight train. I’ve gone for months feeling fine, with very little pain, then suddenly every muscle in my body aches, and certain movements cause sharp pains in my legs, arms, and neck.

I try to figure out why.

I’ve had doctors give me conflicting theories of what causes this pain, and I have read conflicting theories as well. One doctor told me it is a chemical imbalance in the brain. Another has told me it is caused by what I eat, by an inability of my muscles to process sugar that results in toxins in my muscles.

Another suggested it is a symptom of Post-Traumatic Stress Disorder that stems from some early trauma. I had also read that there was a strong link between fibromyalgia and Epstein Bar Virus (or mononucleosis), which I had when I was in junior high. Finally, I have read that it is simply hereditary.

The pain of fibromyalgia is truly invisible.

There is no medical test that shows whether someone has fibromyalgia. There is a “tender point” test in which the doctor checks 18 designated tender points on the body and if 11 or more are tender to the touch a diagnosis of fibromyalgia can be made. But even that test is somewhat subjective.

All my life I have felt pain in circumstances where someone else thought I shouldn’t have felt pain. I can remember saying something hurt when I was a kid only to be told, “That didn’t hurt.” This summer I experienced pain from something that didn’t seem like it should hurt.

I was at my cousin’s house in Houston and his granddaughter was playing with three pine cones. She kept handing them to me to play with, but the sharp points started to really hurt my hands. I said I didn’t want to play anymore because it made my hands hurt. My sister looked at me and asked, “Does that really hurt?”

Invisible pain. It’s extremely difficult to cope with sometimes.

But I know that Jesus knows how I feel, and that gives me a great deal of comfort. Although the pain Jesus experienced when He was scourged, beaten, and crucified was quite visible, He experienced an invisible pain, too. He experienced the pain of having the sin of the world laid upon Him and of His Father turning away as He cried out:

“My God, My God, why have You forsaken me?”

Matthew 27:46 (NIV).

If you struggle under the weight of invisible pain, take heart that you are not alone. Christ understands your suffering and your pain. You also have fellow Christians who understand what you are going through. The apostle Peter provided for us who suffer a wonderful encouragement in his first epistle:

Humble yourselves, therefore, under God’s mighty hand, that he may lift you up in due time. Cast all your anxiety on him because he cares for you.

Be self-controlled and alert. Your enemy the devil prowls around like a roaring lion looking for someone to devour. Resist him, standing firm in the faith, because you know that your brothers throughout the world are undergoing the same kind of sufferings.

And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast. To him be the power for ever and ever. Amen. 

1 Peter 5:6-11 (NIV).

Satan would love to devour us in our pain.

He wants to make us fall and cease to be of use in God’s kingdom. But if we cling to Jesus, and cast all of our fears and anxiety on Him, He will help us to defeat Satan’s plans.

If you are struggling with invisible pain and feeling like you are at your wit’s end, leave me a comment and I would love to pray for you. It would be a blessing to me to be able to ask our Lord to strengthen you and give you peace and comfort so that you might be enabled to stand firm in your faith. Would you do the same for me?

My site is anotherfearlessyear.net, Please visit me.

 

Have Courage

By Joni Eareckson Tada

 (818) 707-5664 | info@joniandfriends.org

After more than four decades of quadriplegia, I’m tired. My bones are weary from battling everything from pressure sores and pneumonia to stage III cancer. My question these days is never “Why, God?” It’s most often “How?” How do I keep on going? How do I care about others when I’m consumed with my own physical challenges? How can I be kind and civil when pain wracks me?

The other morning Ken could see the weariness in my eyes. Right before I wheeled out to go to the van, he said, “Wait here; I know exactly what you need.” He rushed back with a yellow post-it note. On it he had penned the letter ‘C’ with a felt-tipped marker. I gave him an odd look. “It stands for Courage,” he said, “the courage of Christ. I can see it in your eyes, Joni, and you can do this day. I know you can!” With that, he pressed the post-it on my shirt, right above my heart.

I can’t explain what happened next, but I could feel God’s encouragement. 

Ken only said a few words, but they were brimming with power and life. His was a declaration of the good he saw in me; or, at least the good he wanted to see. And God gave me his amazing grace to rise to the occasion.

Even the best of Christians can feel the weight of weariness. It’s why Hebrews 3:13 tells us to “Encourage one another daily.” Think of the people you’ll see today: friends recovering from surgery, neighbors dealing with grief, coworkers coping with pain. Whether you say it in an email, over the phone, or in person, your words have the capacity to change their countenance and character. And the best word? The Word made flesh, Jesus, who always has courageous words of life.

Oh, Father, I need the courage of Christ to face this day’s demands. Thank you for making me strong in him.

Joni Eareckson Tada, Founder of Joni and Friends, is an international advocate for people with disabilities. A diving accident in 1967 left Joni with permanent quadriplegia. After rehabilitation she emerged with new skills and fresh determination to help others in similar situations. She founded Joni and Friends in 1979 to minister to people living with disability. For over 40 years Joni and Friends has served thousands of families navigating disability, and has delivered over 225,000 wheelchairs and Bibles to individuals with disabilities in developing nations. Joni has survived breast cancer twice and lives with chronic pain and weakening lungs. By God’s grace Joni perseveres, keeping an active schedule, including radio recording, writing, and providing leadership and encouragement to the Joni and Friends staff. Joni and her husband Ken reside in Calabasas, California.

Losing Everything You Have

My own studies have immersed me in the awful book of Job. This man lost everything–there is much we can learn from him. But it may be a definite challenge to plow through these “dark” issues. But we need to do this, sooner or later.

First of all, Job is a mysterious book. There’s no reference to the Temple or the Temple services. No connection with other biblical writings or persons. Most students believe that the book of Job is the first one written in the Old Testament.

It’s not Jewish, but it’s not pagan either.

In a real sense, it speaks about suffering and pain. Job lost everything. And yet this book tries to explain what broken believers face every day. We all struggle. We all will experience some sort of suffering and loss.

Job connects us with those with illnesses–mental or physical.

We are people who must try to navigate through dark things. Most will never really understand this, but we are those who must face adversity and conflict. Like Job we start to ask why. We may even end up accusing God of attacking us.

We have to sort things out and believe me, it’s never easy. As we try we’ll often ask “why me?” We often accuse God. But I’m thoroughly convinced that the Almighty isn’t fazed by our questions and we should never think we’re wrong when we so challenge his goodness. He’s big enough to handle these.

In Job we’ll learn to hear God speak to us through “the whirlwind.”

I want to encourage you (the reader) to find place in your heart for this book. Job isn’t easy to read–but I’ve gained a lot by reading it in a modern translation, but anything works. Just pick it up and read. Chapters 1-3 are good.

We’ll realize all of our questions will probably not be answered, but that’s okay. The problem of our suffering will most likely remain. There are no pat answers. I’m sorry.

“Anyone who has suffered knows that there is no such thing as ‘getting a grip on oneself’ or ‘pulling oneself up by the bootstraps.’ The only bootstrap in the Christian life is the Cross, sometimes laying hold of the cross can be comforting, but other times it is like picking up a snake.””

Mike Mason

Notice Her Eyes, [Handicaps]

Stuck in the wonders of scripture we read about Leah and her sister Rachel. We see the two daughters of Laban have become Jacob’s wives. We must step into Genesis 29 to see more.

Jacob longs for Rachel. She is his “soul mate” and because he’s in love, the customs and technicalities of the day somehow get by him. Because of this, he will have to take on Laban’s subtle trickery, where daughters get exchanged, and we must sort out who is who.

Laban’s deception creates a huge crisis for everyone. 

But it seems Jacob just rolls with it. I suppose deception has always been Jacob’s strong suit. (But when we see a deceiver like Jacob gets deceived, that can’t be all bad).

But it’s Leah that I tend to think about. Her own issues are unique. Genesis 29 explains it a bit cryptically,

“Leah’s eyes were weak, but Rachel was beautiful in form and appearance.” 

Genesis 29:17

You must know that there is confusion by commentators about the “weak eyes.” Some take it literally (as in, she is very “near-sighted,”) while others who look at the original Hebrew find the words to be a bit looser and vague. They tend to think that this is a polite way of saying she really wasn’t pretty.

The text also states that Leah was “hated.”

Genesis 29:30-31.

She is wounded, and life requires that she live as unwanted. She is a woman of tragedy and broken hopes and dreams. She will always live as a reject. At best, she will always be a distant second, and perhaps a bit scorned and neglected for this.

I conclude that Leah is the champion for the challenged.

I love Leah and I think I understand her. Her life is a long tragedy and very full of sadness. For the next 30-40 years she will always be a cast-off, someone who has been broken on life’s bitter vagaries. She’s a fellow struggler, and a survivor.

Her sad life is comparable to us who have to fight so hard over our own illness or handicaps.

She must’ve been challenged by her terrible weakness. I understand this. My own life has been “topsy-turvy” and a really hard struggle. Somehow it seems we must work through these things way too much.

It doesn’t seem fair. 

For those of you who are confined to a wheelchair, or must use a cane, or who deal with a physical or mental illness. Leah should be our hero. For those who have been betrayed by addiction, or who have felt rejected through a bitter divorce– Leah speaks to us.

She is for every loser and for failures of all stripes. But through all of our setbacks and messes, we must realize that God does love us– even as we weep.

We may have Leah’s eyes, but we also have His grace.

I have a new site at alaskabibleteacher.com.