A Failure to Understand [An Excerpt]

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Excerpt from “A Firm Place to Stand”

BY MARJA BERGEN

I’m disappointed when friends and family who know me well say things that reveal a gross misunderstanding of depression and how it affects those of us who suffer from it. One person close to me thought depression was something we bring on when we feel sorry for ourselves. Perhaps she thought we liked the attention.

Sufferers of depression would do anything to feel happy and vibrant again. When I’m depressed, many friends keep me at arm’s length. I don’t blame them. It’s not pleasant to be around me when I can’t find anything to talk about except my pain. Depression does that to you: It turns your thinking inward; all you can wrap your mind around is the misery you feel. You end up feeling very alone.

Another person complained to me about an acquaintance with depression who couldn’t manage to do anything more than lie on the sofa. “Couldn’t he just try and make himself do something?” she asked. Nothing I said could convince her that this was an illness that, like other illnesses, couldn’t be helped by simple willpower. Those who have never experienced depression find it difficult to understand how profoundly a brain disorder can affect the entire body.

A long time ago, when I was bordering on psychosis, my doctor put me in a seniors’ care facility for a few days to give me relief from the stress I faced at home. I called a close family member to let her know where I was. She advised me, “You’ve got to pull yourself together and be strong. You have to try harder.” That was insensitive. I was at the facility because I was doing my best to recover – I wasn’t living with eighty and ninety-year-olds for fun. She should have known I always try my best. When I’m trapped in this state, extricating myself is extremely hard. I need time and medication to recover. If I sound angry and hurt, yes, I was.

A person I worked with recommended strongly that I get counseling. “You don’t need those pills you’re taking. All you need is to talk to someone at my church.” She knew nothing about mental disorders like mine. She had no idea what I was dealing with. Again, I seethed, remembering how psychotic I was when I was first admitted to hospital. I could become sick like that again if I didn’t take the medication my mental stability depended on. Would this person tell a diabetic to stop taking insulin?

Christian psychiatrist and author, Dwight L. Carlson, writes, “There are legions of God-fearing Christians who – to the best of their ability – are walking according to the Scriptures and yet are suffering from emotional symptoms. Many of them have been judged for their condition and given half-truths and clichés by well-meaning but ill-informed fellow believers. ‘Pray for God’s forgiveness,’ some are told. ‘A person who is right with the Lord can’t have a nervous breakdown.’”

Fortunately, I have not been treated in this way. The church congregations I’ve belonged to were understanding, yet the stigma continues. It hurts me deeply that Christians who should be compassionate are often judgmental. Church communities need to learn the medical basis for mental disorders and how that differs from the spiritual. They are in the best position to help those in crisis. But when they don’t understand, they are in danger of doing a lot of damage. For Christians, there is nothing worse than to be told our emotional problems are our own fault, the result of unconfessed sin. We suffer so much already. Having to shoulder blame multiplies our mental anguish.

 

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1 Dwight L. Carlson, Why do Christians Shoot Their Wounded? Helping (Not Hurting) Those With Emotional Difficulties,(InterVarsity Press, 1994)

Marja Bergen has lived with bipolar disorder for over forty years. Her mission is to dispel the lingering stigma attached to mental health conditions and to encourage people to lovingly welcome the sufferers into congregations by understanding them better and supporting them in practical ways.

She is the author of Riding the Roller Coaster (Northstone, 1999) and A Firm Place to Stand: Finding Meaning in a Life with Bipolar Disorder (Word Alive). Marja is the founder of the growing faith-based support group ministry, Living Room.  Visit her website and her blog.

 

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Becoming Manic: What You Can Do

http://joemacgown.deviantart.com/
http://joemacgown.deviantart.com/

Top tips for coping

These are a list of things that people who have difficulties when they become high or manic have found helpful:

  • Try to get some sleep. Going without sleep has been shown to cause manic states and make them last longer.
  • Eat well. Don’t go without food or eat high energy food. Eat slowly.
  • Use relaxation techniques.  Quiet prayer works well right now.
  • Stay in bed even though you feel compelled to do lots of things.
  • Don’t act on your ideas. In a few days time you may see things completely differently.  Emailing friends now is dangerous. (I know).
  • Don’t buy anything expensive. Some people have found it helpful to give their credit cards/check book to friends.  (I tried to buy a 7 foot potted tree in London, UK once, because it was lonely.)
  • Use medication, herbal remedies, or other things that slow you down and/or help you sleep.  Think “speed bumps”.
  • Take relaxing (rather than high energy) exercise e.g. walking, swimming.  This is a must-do.
  • Make a plan for each day and keep to it. Don’t plan to do too much.
  • Try to do things slowly rather than quickly. Talk and walk consciously slower than you feel driven to.
  • Challenge any grandiose ideas you might have about yourself.  You must do this!
  • Reduce any pressures or stresses on you.
  • Cut out stimulants e.g. coffee, sugar, chocolate, fizzy drinks, alcohol. Some anti-depressants (e.g. the SSRIs like Prozac) can have stimulant-like effects – discuss this with your doctor and consider stopping them.

It may be helpful for you to make a plan about what to do before you get really elevated. You know yourself best, so build as many things into the plan that you feel will help you not do things you may later regret. It may be helpful to draw up a plan, and a list of ‘warning signs’, with a trusted friend or mental health professional at a time when you are not ‘high’, but that can be put into place as you or others notice your warning signs.

Some people believe that ‘getting manic’ is a response to not thinking about or facing things that might be quite frightening or depressing. It might be helpful to ‘get connected’ to such things, by talking and thinking about your life and some of the root causes of some unhappiness in your life. You could do this with a trusted friend or mental health professional.

 

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A Day in the Life of a Mental Hospital Patient

6:30 am. “Rise and shine,” but this is debatable– you simply just breathe and walk, in this kind of a desperate mental fog,  (Simply put, ‘there will be no sunshine for you today.’) But, this only just seems to really matter to us, who have no hope.  You exchange brief greetings with your roommate, which only just seems proper, even at this level.  We are given “ratty” old surgical scrubs to wear through out the day.

We head down ‘en mass’ to the cafeteria.  I see the servers on the line, I notice that they avert their eyes from us as we form a hungry queue.  Sometimes, they will give us choices: “bacon or sausage?”  To a mental patient, this can be a Gordian Knot of complexity.  So the line moves slowly, as we try to sort out this conundrum.

There is no coffee for us, as patients.  It has been two weeks for me, and I dream of a cup of hot coffee, with cream.  Some of the attendants drink Pepsi, although it is done hiddenly, but we all know it.  We resent their liberty, especially when we have none.  There is a question of equity, with us, which has been violated.

8:40 am.  We are all race to be the first in line for our morning meds.  It almost seems we are afraid they are suddenly going to run out.  I get my Seroquil, my lithium, my Zoloft.  Additionally, because I am ‘post-op’ brain tumor, I am given a mild stimulant called Provigil to help me think clearly.  I have no idea if it works, or not. (I rather have a cup of coffee.)

We then gather into a day room full of clunky and ugly furniture.  It is big, and the chairs encircle a grimy tile floor to make a large open space.  This is not an orderly place, as people are wandering about, some stare at the wall or at a fake plant in the corner.  It is noisy, some even shout.  Others just “rock” back and forth to a song that only they can hear.  A few of us lie in “fetal position” of hiddenness, just wanting to disappear.

The thought occurred to me one day, of a ‘giant aquarium.’  It was constantly moving, swirling about.  If you stopped moving, it meant that you were dead.  Everyone was moving, and oblivious to the others who were also moving.  This seems to explain much.  (You will need to accept the ‘aquarium’ idea if you really want to process the moment.)

On one of my stays, weeks went by before I realized that this particular meeting actually existed, but I was very confused and seriously beyond any correction.  I was really struggling with clinical depression, so meals and meds was all I could manage.  When I finally figured this out, I quickly joined the fish bowl.  It was both good and bad.  But mostly good. Finally as bleak as it was, I started accepting reality.

11:00 am.  One thing you do notice is a lot of disjointed conversations.  You would speak to someone and 10 minutes later they would answer.  And for the most part, conversations would be muted, whispered to people.  As if there was a conspiracy involved, and a certain appropriateness must be taken. We were a paranoid bunch.

Sometimes an attendant would turn on the TV.  I can remember watching cartoons and just maybe I would think that they were communicating to me in code.  We did have a VCR for movies, but because one guy urinated into the machine, it shorted it out.  So, alas, no more movies.

During one stay (and there were several) I was suicidal.  The staff watched me like a hawk, sitting at my door out in the hallway. But I was desperate to cut my wrists, so I stood up in a chair.  I took down a clock and wrapped it in a blanket, to muffle the sound of breaking glass.  I managed to slash my wrists deeply and often, before the nurse came in my room.  For a moment, I brought an excitement to the staff.  And perhaps a certain meaning to me.

When you’re in a psych ward your days are beyond tedious.  One day is like the next.  The psychiatrist comes to see you for 10 minutes, and it is a high point of your day.  You discover that any new explanations, or treatment plans are done solely by the doctor.  That is one of the first cardinal rules on the ward.  Ask a nurse or an aide, and they invariably dodge.  But the psychiatrist “rules the roost.” Everyone follows his decision. This is useful to know.

1:00 pm.   Suddenly a young teen girl with schizophrenia, screaming and pounding her head against the wall has now becomes the focus.  Every couple of days this happens, and in a twisted way punctuates the drabness of the day.  She is artfully restrained by the staff and taken to “the padded cell.”  We are all told it is for her own protection,  but we as patients, we all rally behind her fight.  When she makes a break from the nurses we all cheer her effort and want her to escape.

The second cardinal rule of the floor is that you don’t “stick out” in any way. Creating an issue is never tolerated, whatsoever.  Demanding more TV time, or coffee, or a newspaper will hardly ever go over well.  Just before Thanksgiving, 2003, I timed my meeting with the pdoc to raise an issue of a fresh cup of coffee.  There was a nurse present at our meeting, and she had to respond to the doctor’s order that I was to be given coffee on Thanksgiving morning.  The next morning the coffee was delivered, but the nurse insisted that she would set in a chair next to me until I finished.  Nevertheless, it was a glorious moment.

3:00 pm.  I soon developed auditory hallucinations.  First, I kept hearing a CB radio, squawking constantly.  A few days later, I started to hear a telegraph, “dit-dot-dash.”  They both were very loud and insisting that I pay attention.  Also, I would have 3 or 4 moments of seeing black and hairy spiders climbing at me.  They were so real, and even volitionally know they were not real, I still panicked.

4:30 pm.  They’re other issues as well.  I basically hated phone calls from family.  When they did come they always seemed intrusive and seemed to work against the thinking on the ward.  When a few friends did visit, I would be abrasive and rude.  Wishing they hadn’t made the effort.  I imagined their hearts processing me and my need to be there, and it disturbed me.  Since I lived about 300 miles from the hospital, it took effort on their part to try to see me.  Looking back though, I wish I had been nicer.

8:48  pm.  Getting ready for bed.  It seems that is what I have waited for this all day.  These are moments I have started to live for.  Sleep = oblivion.  I fade to black, and life is paused.  There isn’t any issues for me to figure out.  For eight hours, I find peace,  Sleep is a deep mercy, a gift given to us from the Father.  Those of us, who struggle hard against the dark, understand the “gift” of grace in the form of sleep.  Depressives very often crave sleep. We often want to hide into it, as if doing so would solve our problems and issues. For me, sleep was the only time I was free from the ward.

I want to sleep, to close my eyes and to be gone.  I suppose that is true, for all of us who want to “commit suicide by sleep.”  We seek oblivion, and long for the moment when we can “check out.”  We want to be forgotten and overlooked. We deeply want to be erased, and move directly into forgottenness.

When we have been committed to the ward as patients, we will probably be shaken to our core.  Our insertion into a diverse floor of mental illness, will always introduce us to deep desperation. We are jolted that there is a darkness that is pursing us far beyond what seems is right.  We must call out to Him who can save us.

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kyrie elesion, Bryan

 

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Epileptic Christians Rule

Epilepsy understood
Epilepsy understood

“My health may fail, and my spirit may grow weak,
    but God remains the strength of my heart;
    he is mine forever.”

Psalm 73:26, NLT

I think it’s time for me to talk openly about this.

For several months I have been experiencing absent seizures. These are moments when I just ‘check out’ and stare at something–actually at anything, but bright and flashy will almost always draws me in. These are not the ‘grand mal seizures’ with the jerking and shaking and rolling around (but I’ve been told that these can happen to me.) I have the ‘petit mal’ variety. Many times they go undetected and unnoticed by others. They seem like a long pause of thoughtfulness. But it isn’t. I’m having a seizure.

It seems just what I needed, “another kick-in-the-head.” The thought has been brewing lately that I’ve been mistreated by God again. Why? (Why do I always get the hammer? I wonder if heaven has a Complaint Department?)

My medical history would rival the classic, “Moby Dick” in terms of sheer mass and requiring “heavy lifting.” Hepatitis C, Manic depression, Brain tumor surgery and all the after effects–and now this. Perhaps, I need to spend some quality time with my Father?  I like this verse a lot.

“O Lord, if you heal me, I will be truly healed;
    if you save me, I will be truly saved.
    My praises are for you alone!”

Jeremiah 17:14, NLT

I have worked hard to eradicate self-pity over the years (or I think I have). I’ve had so many medical issues and I don’t ever want to add “hypochondriac” to this list.  I heard this joke about a young boy who was so caught up with his illness that he started to take his M&Ms one by one with a glass of water, like a pill.

The jolt is becoming real now. They want to take my driver’s license away. (What next–will I be mandated to hear a protective helmet?) All of this is so wrong, it seems to me. (“Can I get an ‘amen’ here?”) The last few days I’ve taken a new med, a proven anti-convulsive. I have never ever wanted a drug to work more then this one. Unfortunately, I am experiencing some side effects. I covet your prayers now, more than ever, especially for my wife, Lynn and my kids.

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“I will trust Him. Whatever, wherever I am, I can never be thrown away. If I am in sickness, my sickness may serve Him; in perplexity, my perplexity may serve Him; if I am in sorrow, my sorrow may serve Him. My sickness, or perplexity, or sorrow may be necessary causes of some great end, which is quite beyond us. He does nothing in vain.”

    John Henry Newman

Some links I have discovered to be interesting, and maybe even helpful.

http://epilepsyfoundation.ning.com/group/christianswithepilepsy

http://www.squidoo.com/ahealthyresponsetoseizuresversusdemons

http://morethanstone.blogsome.com/2007/02/27/epilepsy-and-spiritual-warfare/

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ybic, Bryan

 

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