“In our family “whim-wham” is code, a defanged reference to any number of moods and psychological disorders, be they depressive, manic, or schizoaffective. Back in the 1970s and ’80s – when they were all straight depression – we called them “dark nights of the soul.” St. John of the Cross’s phrase ennobled our sickness, spiritualized it. We cut God out of it after the manic breaks started in 1986, the year my dad, brother, and I were all committed. Call it manic depression or by its new, polite name, bipolar disorder. Whichever you wish. We stick to our folklore and call it the whim-whams.”
Speaking in code is often our way of communicating to those who are curious. We seldom tell anyone we have bipolar disorder outright. Some of us tried, and failed; we fall back to “I’m just a little blue today,” or the classic, “I’m just woke up on the wrong side of the bed.” We really can be somewhat disingenuous.
All too often these are half-truths that deflect the sticky issues of a mental breakdown. We seek to salvage some kind of dignity, or evade the inevitable stigma that would certainly come if we told the truth. We choose to evade, but at a cost.
I struggle with the stigma of both bipolar disorder and epilepsy. I’m still uncomfortable when others seem uncomfortable with me. So, I have developed a general rule:
Bryan’s Rule #14, “Never reveal your illness, except to qualified people.”
I suppose this adds a layer of personal security. The occasions I have violated this rule have resulted in awkward pauses and odd looks. Afterwards, the relationship changed. It was as if I suddenly sprouted a second head, or something.
As Christian believers, I know we are supposed to walk in the truth. But exactly how truthful am I supposed to be? I’ve always had an iconoclastic streak, and I love stretching the social boundaries of others. Bipolar disorder has been an illness made-to-order for people like me.
Bryan’s Rule #15, “Openness can be a true step toward my healing.”
But it take truth to change. We really need to be honest by bringing things into the light. Obscuring the truth keeps us isolated and distant from others. Will speaking forthrightly about my bipolar disorder be a challenge? Of course. But necessary if I want to heal and cope.
I’m not advocating making a big sign and parading down Main Street. Just to be a bit more honest with others, and ultimately with ourselves. Let’s be comfortable with our own personal “whim-whams.”
Are people of faith with a mental illness different from those who have a physical illness? Much about mental illness still remains a mystery. That’s one of the reasons people are tempted to spiritualize the problem. They hope that the person with mental illness would be able to gain spiritual strength and thus gain victory over the illness.
What remains hard for many to understand is that having a mental illness and being a strong person of faith is no different than having a serious physical illness and being a strong person of faith.
How can church leaders encourage support of people with a mental illness? What does a person with a mental illness need to help him or her feel accepted and part of the congregation? How does the Christian message and experience take on meaning under these circumstances? What exactly is mental illness, anyway?
Marja Bergen, in her book, Riding the Roller Coaster (Northstone, 1999), describes her experiences living with bipolar disorder. She talks about the many important factors that helped make her life with this illness tolerable and manageable. Having a supportive husband, friends, and service systems were critical, but she also acknowledges the importance of a spiritual home.
Her church friends learned to understand her illness and provided spiritual nurture, especially during difficult times. She speaks about friendships which include a common belief as being the most valuable ones she’ll have. But she also admits that she was fortunate in this regard.
Sadly, many people with mental illness who look for spiritual help during difficult times face ignorance, stigma, avoidance, and judgment. The spiritual counsel and prayer these people receive frankly do more harm than good.
Understanding mental illness, even from the professional, scientific perspective, is still very much a work in progress. Schizophrenia and its related disorders, bipolar disorder (also known as manic depression), major depression, panic and obsessive-compulsive disorders, are all considered mental illnesses. It is estimated that between 15 percent to 20 percent of North Americans will, at some time in their lives, experience a mental illness. Most of these will suffer debilitating depression.
Evidence suggests there are probably organic (biochemical) reasons for the illness, or psycho-social origins — or a combination of the two. Treatments that deal with the symptoms include medications, psychotherapy or a blend of both.
What is clear to people working in the field is that the experience of the illness goes far beyond living with the symptoms. While a person who has a physical illness — even cancer — suffers discomfort and anxiety related to the illness, those who have a mental illness suffer from a constellation of additional issues. These all affect their ability to return to wellness. One of them is stigma, both internally and externally imposed. There’s also the loss of self-worth and self-efficacy that might come with a loss of job, friends, marriage and the feelings of being separated from God.
How can the church assist someone in a situation as devastating as this?
1. Church leaders and church members need to know that a mental illness is not the same as a spiritual crisis. Nor is the absence of healing, especially after fervent prayer, a sign of judgment or lack of faith.
2. There should be no judgment about the use of mood altering medications. Medications are commonly needed to treat the bio-chemical causes for the disorder and radically help many keep their symptoms under control.
3. Quality of life for a person suffering from mental illness does not depend on a complete remission from the illness.
What church members need to know is that many experience a recovery which allows them to return to an active and fulfilling life — but still continue to experience times that are difficult. Recovery from mental illness means: the return of a positive sense of self, usually through meaningful endeavour (work, vocation), a circle of meaningful relationships, a place to live that the person can call his or her own, and a spiritual life that feels a reconnection with God.
The recovering person can be experiencing personal brokenness and limitations, yet have valuable gifts to offer to the church community.
Peter Andres is a regional director for MCC Supportive Care Services, a non-profit charitable organization which supports people with disabilities — including people with mental health issues. He can be contacted at peter@mccscs.com.
“Oh, how often they rebelled against him in the wilderness and grieved his heart in that dry wasteland.”
Psalm 78:40, NLT
“For forty years I was angry with them, and I said, ‘They are a people whose hearts turn away from me. They refuse to do what I tell them.’”
Psalm 95:10, NLT
“And do not grieve the Holy Spirit of God [do not offend or vex or sadden Him], by Whom you were sealed (marked, branded as God’s own, secured) for the day of redemption (of final deliverance through Christ from evil and the consequences of sin).”
Ephesians 4:30, AMP
I must say, we instinctively know how to offend God. No one has to teach us how it’s done, we just know how to do it. We have the amazing ability to sadden God. Our sins, and our rebellion causes God to tremble and weep. Disobedience, in any form affects the very essence of God’s well-being.
As a believer in Jesus, I know that sin is never permanent. It is not like getting a spiritual tattoo on our hearts. Our faith prevents sin from completely attaching itself to our hearts. But my sorrow or grief over my sin, must drill itself directly into my heart. I should come to the point where I can not sin against Him who loves me hysterically.
To turn back to Him involves “contrition.” To be contrite is to imply a very simple acknowledgment of our sin– and the rebellion that is often seen within. Somehow this is possible. I do not understand the mechanics of it all. But I am very glad it is there. God loves a heart that is contrite.
God is very offended by our sin. But somehow we do not grasp this. More or less this is a bit intangible. In our mind, we go don’t ever stop sinning against Him. We feel that we are getting away of something, which isn’t true at all.
As a closet-Lutheran, I propose the Lutheran Church which also has its own act of contrition, which is said during Holy Absolution. The following version, taken from the Lutheran Service Book (2006), says:
O Almighty God, merciful Father, I a poor, miserable sinner, confess to you all my sins and iniquities, with which I have ever offended you and justly deserved your punishment now and forever. But I am heartily sorry for them and sincerely repent of them, and I pray you of your boundless mercy, and for the sake of the holy, innocent through many bitter sufferings and death of your beloved son, Jesus Christ, to be gracious and merciful to me, a poor sinful being.
I can say nothing more than this. I will simply rest in this kindness that isn’t me at all. He loves each of us, as if we were the only ones. Thank you Father.
How many families in your church have a loved one who struggles with mental health problems? That’s kind of a trick question. People don’t talk about mental health problems. You’re more likely to hear them describe their child’s condition as “something like autism,” as the elder of one church we know says.
Or they might cover up entirely, as does an elder’s wife in another congregation. When her bipolar disorder swung into mania after childbirth, her family, already managing the added responsibilities of a newborn, had to manage her condition as well. But because her condition is a secret, they did so without any support beyond the usual “new baby” dinners.
The answer to the question is, if your congregation is representative of the U.S. population, one in four households will struggle with someone’s mental health problems over their lifetime. That’s schizophrenia, bipolar disorder, obsessive compulsive disorder, disabling chronic depression, and various anxiety disorders. Look at the faces seated around you this Sunday. Someone is probably hurting. And they’re probably afraid to tell you.
The least acceptable disability
Out of Control
A study where people ranked disabilities by their “acceptability” returned these results, in order–most acceptable: obvious physical disabilities, blindness, deafness, a jail record, learning disabilities, and alcoholism.
Least acceptable: mental health problems. People with mental health problems frighten us because when people become mental ill, they become someone we don’t know. A bright boy who was his family’s bright hope may find he just can’t cut it anymore as schizophrenia turns him paranoid, disoriented, unmotivated in the extreme, and overwhelmed by delusional voices that tell him, over and over, how worthless he is.
Or, in the case of bipolar disorder, a girl who was a well-liked and active member of her Teen Challenge group may suddenly turn promiscuous, run away from home, and make a new home in the streets of a strange city. Laziness. Promiscuity. Violence. Sin. That’s what many people see when they look at those with mental health problems. It’s hard to believe that people may behave in such unacceptable ways and not be in control of their behavior.
Having a mental health problem is a lot like being on alcohol or drugs, without being able to stop. Medications “work” for about two-thirds of us. That means that a third of us can’t ever get off the chemical ride that our brains produce.
For those of us who can use medications, the side effects can be daunting. I have lost about 20 percent of my small motor functionality as a result of one of the five medications I take for bipolar disorder. I prefer that to losing large motor control and having another auto accident, being so disoriented I can’t find my way home from the store, losing bowel control in a busy bookstore, gaining 45 pounds, or any of dozens of side effects I’ve experienced on other medications.
Many people become so frustrated with side effects that they stop taking medications. Only about half of us accept treatment. Even when we are treated, not everyone regains their status as a fully functioning adult. In our extended family, six people have diagnoses. Those with bipolar disorder and chronic depression are successfully medicated and work full-time. Those with panic disorder and schizophrenia are on permanent disability. Nothing has pulled them through.
What the Bible says
The Bible talks about mental illness, as well as physical illness.
It describes a king who was made mentally ill until he would recognize the sovereignty of God (Dan. 4:29-34).
It describes demonized men who lived among the tombs and terrorized everyone until Jesus set them free (Matt. 8:28-33).
It also describes as demonized a young boy that most scholars today say had epilepsy (Matt. 17:15-18). Jesus delivered him, too.
What was once believed
What does this tell us about illness?
First, that God is able to heal. Second, that some physical and mental illnesses are caused by demons. Third, that some mental illnesses are caused by sin. But are all mental illnesses caused by demons or sin, and is seeking God our sole resource for physical and mental healing?
Since the 1950s, we have usually sent church members with epilepsy to doctors for effective treatment with anti-convulsant drugs. In a similar way, we’ve learned that medicines can effectively treat many cases of mental illness. So if all mental illnesses were caused by demons and sin, medicine would be exorcising demons and turning hearts to repentance. That is certainly untrue, for those are the works of the Holy Spirit.
Instead, we now know that most if not all mental illnesses are biological in origin, with environmental factors possibly triggering an existing genetic predisposition to the illness. Mental illnesses, just like epilepsy, are biological disorders of the brain.
What can the church do?
Compassionate service is one of our core charges as Christians. We observe it almost daily in the experience of one man we know with schizophrenia. His life is confined almost entirely to his home due to the fear, indecision, and lethargy that have become the shape of the illness in his body. But neighbors bring him occasional meals. The secretary of his small church talks to him by telephone every weekday. Several other members take weekly calls at designated times to help break his isolation. If he doesn’t feel up to driving to his Bible study meeting or Sunday services, some member will give him a ride. Nearby relatives help him plan and manage his finances, and come by to clean occasionally and for DVD “movie nights.” Phone cards given as gifts allow him to call his mother nightly. There’s much more that could be done—more frequent house cleaning and more meals and more visits—but he enjoys far more contact with many more loving people than many shut-ins.
The challenging good news is that when people with mental illness turn to someone outside “the system” for help, the church is first to get the call 40 percent of the time. Is your church ready?
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Carlene Hill Byron is the former Director of Communications for Vision New England. Through NAMI—the Nation’s Voice on Mental Illness, she and her husband, James, train churches to effectively serve people within the congregation with mental health problems and also teach NAMI’s class for families of people with mental health problems. They are members of Asbury United Methodist Church in Raleigh, North Carolina, where James serves on staff. First published by Vision New England’s Ministries with the Disabled, Acton, Massachusetts.