Handling a Diagnosis of Tardive Dyskinesia

Tardive Dyskinesia (TD) is a condition of involuntary, repetitive movements of the jaw, tongue or other body movements. It frequently is a side effect of the long-term use of antipsychotic drugs used to treat schizophrenia or bipolar disorder. It is almost always permanent. I’ve been told Vitamin E might help a bit.  Benzodiazepines have also been used with mixed results on a short-term basis.

Some examples of these types of involuntary movements include:

  • Grimacing
  • Tongue movements
  • Lip smacking
  • Lip puckering
  • Pursing of the lips
  • Excessive eye blinking

(Wikipedia)

I recently was diagnosed as having TD after the use of Zyprexa. My version is my lower jaw moves from side-to-side, unless I concentrate on not doing it. I quickly revert to this involuntary movement when I’m not aware of it. I recently saw a video of myself (with my family) and sure enough there I was, doing the ‘jaw thing.’ It was very obvious. It was also very embarrassing. (I have the ‘lithium jitters’— where my hands always shake, but TD is different.)

There are a couple of things I might mention:
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1) I’ve discovered that there is a real social isolation with this TD stuff. To be doing this in public is “not acceptable.” I have had people come up to me wanting to know what’s my problem. Since I can’t control the movement I just say, “It’s my meds— they affect me this way.” In a way it’s like wearing a neon sign saying, “I’m a fruit cake.” Having a mental illness is stigma enough, but the TD just puts a new edge on it.

2) As a natural introvert the isolation has only deepened. (I avoid crowds and most social engagements.) I guess if the truth be told, I’m uncomfortable when others look at me strangely or whisper to each other. My standard ‘paranoia level’ has taken a new twist. I feel I’m compelled to explain. I guess I’m embarrassed when others are embarrassed.

3) I settle myself down in my faith to cope. I know I’m not alone in this– the Lord Jesus is always with me. He holds me tight through all these twists and turns. Since I isolate myself so much, I savor the connection I have with a few friends who have become inured to my condition. Social media helps out— Facebook is a big help, as well as my two blogs.

4) One of the things I try to remember are the issues of selfishness and pride. I keep reminding myself it’s not about me all the time. One of the significant areas mentally ill people deal with is self-absorbed thinking. It seems it comes with the illness.

5) I try to keep a sense of humor everyday. It breaks down the mental pain to tolerable levels. We can take ourselves too seriously sometimes. Be more patient with yourself. I know I have to.

I ask that you remember me in prayer from time-to-time. I’m in ‘uncharted waters’ (it seems) and I sometimes feel all alone with my mental illness and all its tangents. I want good to come out of this. (An instantaneous healing would be o.k. But, I’m not too finicky.) Sorry for so much.

If you can’t pray, don’t feel at all impinged upon.

I’m Deeply Loved, [and Forgiven]

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“My deepest awareness of myself is that I am deeply loved by Jesus Christ and I have done nothing to earn it or deserve it.”

― Brennan Manning, The Ragamuffin Gospel

This quote rings deep within this heart of mine. It echoes and sings with a confidence that is not logical or reasonable by any stretch of the imagination. But I’m learning that I need to consciously aware of his solid and steadfast love that he has for me. I sometimes forget, and when I finally remember I shake my head, and look around in kind of a stunned silence.

He loves me!

But I’m not the only one who is deeply loved. There are millions of others who are walking in this outrageous love. None are worthy; all have sinned. Those who are following are those who have renounced their feeble efforts at self-righteousness. It simply doesn’t work. (But sometimes it takes a while to work this out.)

I ask myself, “What if I got what I deserve?”

And when I follow this ‘line-of-thought’ I get a gnawing sense of doom– sort of a panicky fear. To get what I really deserve would be the most terrible thing I could ever know. For “I am the chief of sinners.” I believe my past sin would destroy most people.

“But God showed his great love for us by sending Christ to die for us while we were still sinners.”

Romans 5:8

My mental health can be fairly disruptive to my spiritual health. My depression poisons everything. I suppose that at times I can be quite ‘trying’ to those closest to me. It can be frustrating but I have discovered that His grace is more than enough to hold me tight, and protect others as well.

And Jesus accepts me, receives me, loves me even if others can’t or won’t. I may be ‘defective’ to some, outcast by others, but I am never, ever alone. Jesus loves me– not for what I can do or how I function. He loves me unconditionally.

“See how very much our Father loves us, for he calls us his children, and that is what we are! But the people who belong to this world don’t recognize that we are God’s children because they don’t know him”

1 John 3:1

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Grabbing On to Psalm 27!

This is a perfect Psalm for broken believers–those who sometimes struggle to believe. We can understand because we each have encountered difficult things–hard things. So buckle up, here are my comments on Psalm 27. I really hope that they might help you through your personal mess.

I sometimes use the Message Bible:

Light, space, zest—
    that’s God!
So, with him on my side I’m fearless,
    afraid of no one and nothing.

2 When vandal hordes ride down
    ready to eat me alive,
Those bullies and toughs
    fall flat on their faces.

Man alive, we tolerate so much darkness. But the believer understands that God not only chooses him/her, but protects them. There is going to be difficulty, that much I understand. I can’t and won’t sugarcoat this. I’m not naive.

“Vandal hordes;” and “bullies and toughs” are motivated by darkness–Satan’s kingdom. The psalmist David sees trouble up ahead, he’s very real here and definitely not a ‘pie-in-the-sky’ optimist. But he’s very much convinced of their defeat.

When besieged,
    I’m calm as a baby.
When all hell breaks loose,
    I’m collected and cool.

4 I’m asking God for one thing,
    only one thing:
To live with him in his house
    my whole life long.
I’ll contemplate his beauty;
    I’ll study at his feet.

There’s a place of safety for David. He’s being blasted right and left by the enemy, but in that place, he finds “calmness.” He’s protected and you could say he wears spiritual body armor. Wearing that David discovers that he’s bullet-proof, for he wears a vest of spiritual steel.

The house of God is crucial, and he wants to live in it, to “contemplate” the wonder of the Spirit of God. David sees it as his castle that stands in resistance against all those who want to destroy him. And believe me, it is his complete focus.

He injects the word “study” which tells us that he’s found Someone that teaches him the things he needs.

That’s the only quiet, secure place
    in a noisy world,
The perfect getaway,
    far from the buzz of traffic.

6 God holds me head and shoulders
    above all who try to pull me down.
I’m headed for his place to offer anthems
    that will raise the roof!
Already I’m singing God-songs;
    I’m making music to God.

David is aware that the world is a noisy place (v. 5). But he knows that the very presence of God is a place of quiet and security, it’s “the perfect getaway,” that exists for everyone who believes.

Worship is critical here.

I think it not only exalts and glorifies God but it also is the best way of protecting himself. David is exuberant here, he can hardly contain himself! Perhaps we really don’t understand–it seems rather excessive–may be too zealous for us.

In v. 6 we see the spiritual effort of God holding David in place. He understands that there are many who are trying their best “to pull” him away from the security of God.

7-9 Listen, God, I’m calling at the top of my lungs:
    “Be good to me! Answer me!”
When my heart whispered, “Seek God,”
    my whole being replied,
“I’m seeking him!”
    Don’t hide from me now!

9-10 You’ve always been right there for me;
    don’t turn your back on me now.
Don’t throw me out, don’t abandon me;
    you’ve always kept the door open.
My father and mother walked out and left me,
    but God took me in.

Wow! “the top of my lungs” is pretty intense. The passage speaks of seeking–that’s the key of this whole thing. To be an authentic seeker has to be a “heart” issue, and never a brain thing. Heart followers certainly understand the difference.

Note that the presence of God is David’s entire focus. One of his petitions here is “don’t hide from me now.” As a New Testament guy, I know that it isn’t really possible. Jesus promised me He would dtay with me. See John 14:15-17.

If you’re struggling, like David did, you’re in good hands. Even though it seems like God is distant, He’s not. “God took me in” is a statement of real faith. David knows that the Father’s love is beyond the love of a father or mother.

And now the comes the finale!

11-12 Point me down your highway, God;
    direct me along a well-lighted street;
    show my enemies whose side you’re on.
Don’t throw me to the dogs,
    those liars who are out to get me,
    filling the air with their threats.

13-14 I’m sure now I’ll see God’s goodness
    in the exuberant earth.
Stay with God!
    Take heart. Don’t quit.
I’ll say it again:
    Stay with God.

“Point me” and “direct me” is David’s discipleship to his Father’s ways. He speaks of enemies (“dogs” and “liars”) who are trying very hard to destroy him. “Out to get me” is David’s assessment of the hard things that come.

David is convinced that God is always very good to him, he understands this. It’s the same for the NT believer, although Satan nips at our heels, God protects us–He’s on our side.

He exhorts us twice to “stay with God.”

Maybe that’s where a lot of issues come. “Don’t quit” is David’s plea. This is stated throughout Paul’s epistles written for us.

What a wonderful Psalm. So much security here (as well as the opposition). Psalm 27 is written to us rascals and inconsistent believers in Jesus. I exhort you to spiritually digest this passage. It’s yours!

Illustration: Solomon’s Temple. I’m using “The Message,” a translation by Eugene Peterson.

Misfits

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Broken Fresco– Assisi, Italy

Many voices tell me that there must be distinct lines between sinners (like, me) and Church people. These borders keep order and provide security to those on the ‘inside’ of our Faith. This seems more from a reaction to control than actual sin.

But there are so many people with mental illness: Depression, anxiety, bipolar disorder, schizophrenia, addictions, PTSD, and many others. We are truly an afflicted people.

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Fitting in isn’t always easy

–Joni Eareckson Tada

There needs to be an adjustment to the status quo. Room must be made for the ‘losers’ and the misfits. These are people for whom Christ died. They are special to God.

According to federal  law, buildings must be accessible to the handicapped. Special signs are placed in the parking lots, for special parking and wheelchair ramps need to be installed. This is well and good. But let’s extend this ‘deliberateness’ to those with other needs as well.

“The power of the Church is not a parade of flawless people, but of a flawless Christ who embraces our flaws. The Church is not made up of whole people, rather of the broken people who find wholeness in a Christ who was broken for us.”

–Mike Yaconelli

I encourage you to become proactive when it comes to “opening up” the Church to include ‘the brokenness of the other.’ Even a smile can make the difference to the down-trodden soul.

Love the unlovely,  just like Jesus.