Handling a Diagnosis of Tardive Dyskinesia

 

Tardive Dyskinesia (TD) is a condition of involuntary, repetitive movements of the jaw, tongue or other body movements. It frequently is a side effect of the long-term use of antipsychotic drugs used to treat schizophrenia or bipolar disorder. It is almost always permanent. I’ve been told Vitamin E might help a bit.  Benzodiazepines have also been used with mixed results on a short-term basis.

Some examples of these types of involuntary movements include:[3]

  • Grimacing
  • Tongue movements
  • Lip smacking
  • Lip puckering
  • Pursing of the lips
  • Excessive eye blinking

(Wikipedia)

I recently was diagnosed as having TD after the use of Zyprexa. My version is my lower jaw moves from side-to-side, unless I concentrate on not doing it. I quickly revert to this involuntary movement when I’m not aware of it. I recently saw a video of myself (with my family) and sure enough there I was, doing the ‘jaw thing.’ It was very obvious. It was also very embarrassing. (I have the ‘lithium jitters’— where my hands always shake, but TD is different.)

There are a couple of things I might mention:generics7

1) I’ve discovered that there is a real social isolation with this TD stuff. To be doing this in public is “not acceptable.” I have had people come up to me wanting to know what’s my problem. Since I can’t control the movement I just say, “It’s my meds— they affect me this way.” In a way it’s like wearing a neon sign saying, “I’m a fruit cake.” Having a mental illness is stigma enough, but the TD just puts a new edge on it.

2) As a natural introvert the isolation has only deepened. (I avoid crowds and most social engagements.) I guess if the truth be told, I’m uncomfortable when others look at me strangely or whisper to each other. My standard ‘paranoia level’ has taken a new twist. I feel like I’m always compelled to explain. I guess I’m embarrassed when others are embarrassed.

3) I settle myself down in my faith to cope. I know I’m not alone in this– the Lord Jesus is always with me. He holds me tight through all these twists and turns. Since I isolate myself so much, I savor the connection I have with a few friends who have become inured to my condition. Social media helps out— Facebook is a gift.

4) One of the things I try to remember are the issues of selfishness and pride. I keep reminding myself it’s not about me all the time. One of the significant areas mentally ill people deal with is self-absorbed thinking. It seems it comes with the illness.

5) I try to keep a sense of humor everyday. It breaks down the mental pain to tolerable levels. We can take ourselves too seriously sometimes. Be more patient with yourself.

I certainly ask that you remember me in prayer. I’m in ‘uncharted waters’ (it seems) and I sometimes feel all alone with my mental illness and all its tangents. I want good to come out of this. (An instantaneous healing would be o.k. too.)

 

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The Sterile Curse of Social Isolation

“While they were talking and discussing together, Jesus himself drew near and went with them.”

Luke 24:15

Quite a few studies now out, revealing the reality of social isolation.  It seems more and more people are veering away from social contact. A Duke University study found that Americans are choosing to become more solitary than ever. Many are eschewing all relations all together.  This is a problem.

I’ve seen some of the statistics– fully 25% of people have no relationships at all, and something like 50% have no relationships outside of their spouse and children.  This disturbing trend is building momentum.  In 1985 the figure was just 15%.

I think that a lot of pressure may be coming from the internet, although Facebook and Twitter have reconfigured social connections. Longer work hours, the iPod and Blackberry, chat rooms and cable TV contribute to the move away from human contact.

The commute time is also a factor.  For every 10 minutes stuck in traffic there is roughly a 10% drop in social relationships.  So if you have a bad commute on I-80 you are more likely not to want to have a friend over.

Hundred years ago our society was far more geared for personal contact.  People would regularly visit each other.  Neighbors knew each other.  There were parlor games and dinners.  Music recitations and skits.  Card parties. Television and radio had not yet grabbed the countries psyche.  Sociologists and anthropologists confirm that our history was deep in contact with each other.  We were not built for solitary living.

With community life disappearing people are turning to online relationships. Our churches are trying to adapt, as even Christians are not connecting like they should.  I have been out in the Alaskan bush villages, and the older generation is frustrated because the younger generation seems to be in trouble.  “They don’t pick berries, or hunt; all they do is sit in front of the TV playing Nintendo, or their laptops.”

We need fellowship with others, and God as well. There are very few solitary believers.

I guess the biggest issue of all is mental illness.  Social isolation is a direct antagonist of depression and other disorders.  In order to get better, people must reach out and connect.  There is no substitute, no other option.

I see the shift in my own life.  I have dropped back about 80% of my Dish Network.  I am seeking to back off of being online 6-8 hours a day.  I am trying to be around flesh & blood as often as possible.  I am personally trying to consciously maximize that time.  It keeps me healthier.

To be healthier, we think its physical.  We have our gym memberships and we run on the treadmill.  That is good.  But I’m thinking we are losing out if we don’t workout socially (and spiritually) as well. Christians are  a special species; we need fellowship with others, and God as well. There are no solitary believers.

“This is the message you have heard from the beginning: We should love one another.”

1 John 3:11, NLT

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Mother Teresa’s Heart, [Mercy]

“Intense love does not measure; it just gives”

“No, O people, the Lord has told you what is good,
    and this is what he requires of you:
to do what is right, to love mercy,
    and to walk humbly with your God.”

Micah 6:8, NLT

These are all quotes from Mother Teresa, born ‘Anjezë Gonxhe Bojaxhiu’, 1910-1997. Here are some of the things she wrote or said. I hope they will inspire and encourage.

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Be the eyes of God. See what He sees.
  • See the world as God sees the world.
  • When God sees a homeless man. He sees a precious person who has a painful life, whom everyone else has cast aside.
  • When God sees people fighting against each other, He is grieved because they have allowed their small differences to destroy what they have in common.
  • When He sees a child without parents, He sees the lonely heart abandoned by people who themselves have pain.
  • See what God sees.
Be the ears of God. Hear what He hears.
  • God hears the silent tears of the lonely. He hears the voices of the oppressed. He hears the shouts of injustice. He hears the cries of pain.
  • Learn to listen and hear as God hears.
Be the mind of God. Think as He thinks.
  • Seek to understand the mind of God, to think as He thinks. Observe things around you and have conversations with Him. Seek His wisdom and knowledge. Know that He wants to bring you to a higher consciousness of His Kingdom.
Seek to understand the heart of God.
  • Be the heart of God. Feel what He feels.Feel the pain He feels for those who suffer. Feel the tears He feels for the lonely. Feel the magnitude of His great love and compassion for us His creation.
  • The heart of God is filled with overflowing love and He desires us to participate in His work to bring back wholeness to the world. See that the heart of God is indeed filled with unconditional love.
Be the hands of God. Do as He does.
  • God asks us to take everything we have learned from Him and change things. He asks us to use our hands to do His work: To stand up when there is injustice. To love as He loves. To do things no one else wants to do. By making a connection, volunteering, joining a community or offering to help, we do what God hopes for us all to do: love people to Him.
  • Listen to God and do what He beckons you to do. There is so much that needs to be done, but so few persons willing to do the work of God. We can no longer be just bystanders on the side of the road asking God for handouts, comfort and security. We each have a part in His great plan to bring salvation to the world.
  • Many believe that being spiritual is cerebral. Our minds seek only to contemplate and meditate on God, but that is only part of it. Thinking on God is 1% spirituality. Doing the work of our contemplations is 99% of it.
  • Action above all is what is hardest for us to do; yet, ACTION is the fruit of deep spirituality. Contemplation may be spiritual, but when there is no action behind our spiritual thoughts, they become worthless.

Like the Good Samaritan, what matters is that love is manifested into action. Not just concern, not just prayer, and not just sympathy, but ACTION.

  • The energy that gets the ball rolling and sets God’s love into motion is ACTION.
  • So many of us pray when someone needs help, yet, no one just goes on in and helps. We pray for someone else to do the work, but perhaps we are the ones who should heed our own prayers.
A person of God, sees, hears, thinks, feels and then DOES.
  • Spiritual thoughts are fruitless until they become a part of your life. One who does, follows through with what he has learned and produces fruit. It is the result of our conversations with God. One who thinks only entertains himself. One who does, entertains God.
  • God is excited when we allow our hands to be His hands, because only then can things begin to happen. Only then can work be accomplished.
  • We can no longer remain complacent and removed from everything. He challenges us to walk along with Him and be His eyes, ears, mind, heart and hands to do His work. To walk a closer walk with Him.
When our hands do as God does, then we are truly walking side by side with Him toward the Kingdom of God.

“We have not come into the world to be numbered; we have been created for a purpose; for great things: to love and be loved.

Mother Teresa

Sources: http://epistle.us/articles/deeperspirituality.html and http://en.wikipedia.org/wiki/Mother_Teresa
 
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Our Life in Babylon

Living-in-babylon-Logo

Christians are now smack-dab in “Babylon.” We must live our lives under the auspices of this hostile world-system, and yet stay faithful to our Lord. We must manage ourselves with the same grace as Daniel or Esther.

In Jeremiah 29 there contains an important historical letter that the prophet Jeremiah wrote to those taken into captivity. In it we can absorb much of what is needful for the moment. For people caught in Babylon it becomes a vital document, advising them of what they should now do.

This list comes straight out of Jeremiah 29.

  • First, prepare for the long haul. Be good citizens of your new land, (vv.5-6.)
  • Second, pray for the peace of the nation you’re captive in. (v.7.)
  • Third, don’t be fooled by it’s culture, Discern what is true and what is false. Babylon is full of false gods and worship.
  • Fourth, remember that God has given you “a future and a hope” (v. 11.)
  • Lastly, extend that same discernment to the spiritual understanding of your own past.

These five should be enough to navigate faithfully through hard times in Babylon. We must admit that we’re only “pilgrims and strangers” here. Our citizenship is in heaven where it is secure. By faith we understand this.

As broken believers we are supervised by the Holy Spirit, even in this difficult place, Our souls are shepherded by God, even in Babylon. Our “captivity” is only temporary– it is not a permanent one.

“And you will seek Me and find Me, when you search for Me with all your heart.”

Jeremiah 29:13, NKJV

“By the rivers of Babylon, There we sat down, yea, we wept When we remembered Zion.”

Psalm 137:1

“She who is in Babylon, elect together with you, greets you; and so does Mark my son.”

1 Peter 5:13

‘Alas, alas, that great city Babylon, that mighty city! For in one hour your judgment has come.’

Revelation 18:10

ybic, Bryan

 

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