Handling a Diagnosis of Tardive Dyskinesia

Tardive Dyskinesia (TD) is a condition of involuntary, repetitive movements of the jaw, tongue or other body movements. It frequently is a side effect of the long-term use of antipsychotic drugs used to treat schizophrenia or bipolar disorder. It is almost always permanent. I’ve been told Vitamin E might help a bit.  Benzodiazepines have also been used with mixed results on a short-term basis.

Some examples of these types of involuntary movements include:

  • Grimacing
  • Tongue movements
  • Lip smacking
  • Lip puckering
  • Pursing of the lips
  • Excessive eye blinking

(Wikipedia)

I recently was diagnosed as having TD after the use of Zyprexa. My version is my lower jaw moves from side-to-side, unless I concentrate on not doing it. I quickly revert to this involuntary movement when I’m not aware of it. I recently saw a video of myself (with my family) and sure enough there I was, doing the ‘jaw thing.’ It was very obvious. It was also very embarrassing. (I have the ‘lithium jitters’— where my hands always shake, but TD is different.)

There are a couple of things I might mention:
generics7

1) I’ve discovered that there is a real social isolation with this TD stuff. To be doing this in public is “not acceptable.” I have had people come up to me wanting to know what’s my problem. Since I can’t control the movement I just say, “It’s my meds— they affect me this way.” In a way it’s like wearing a neon sign saying, “I’m a fruit cake.” Having a mental illness is stigma enough, but the TD just puts a new edge on it.

2) As a natural introvert the isolation has only deepened. (I avoid crowds and most social engagements.) I guess if the truth be told, I’m uncomfortable when others look at me strangely or whisper to each other. My standard ‘paranoia level’ has taken a new twist. I feel I’m compelled to explain. I guess I’m embarrassed when others are embarrassed.

3) I settle myself down in my faith to cope. I know I’m not alone in this– the Lord Jesus is always with me. He holds me tight through all these twists and turns. Since I isolate myself so much, I savor the connection I have with a few friends who have become inured to my condition. Social media helps out— Facebook is a big help, as well as my two blogs.

4) One of the things I try to remember are the issues of selfishness and pride. I keep reminding myself it’s not about me all the time. One of the significant areas mentally ill people deal with is self-absorbed thinking. It seems it comes with the illness.

5) I try to keep a sense of humor everyday. It breaks down the mental pain to tolerable levels. We can take ourselves too seriously sometimes. Be more patient with yourself. I know I have to.

I ask that you remember me in prayer from time-to-time. I’m in ‘uncharted waters’ (it seems) and I sometimes feel all alone with my mental illness and all its tangents. I want good to come out of this. (An instantaneous healing would be o.k. But, I’m not too finicky.) Sorry for so much.

If you can’t pray, don’t feel at all impinged upon.

Jesus Actively Helps Me

shipwreck

“So then, since we have a great High Priest who has entered heaven, Jesus the Son of God, let us hold firmly to what we believe. This High Priest of ours understands our weaknesses, for he faced all of the same testings we do, yet he did not sin. So let us come boldly to the throne of our gracious God. There we will receive his mercy, and we will find grace to help us when we need it most.

Hebrews 4:14-16

These two verses out of Hebrews 4 establish three things.
  • We are “criminals” and in need of representation.
  • Jesus Christ stands ready, and able to help us before both this world and to the one to come.
  • Jesus still has a present day ministry as our priest and provider.

And he is busy! He did not ascend to heaven to wait around for his second coming. He is active, and we are being acted upon.

Saving you, and watching over you, is the present work of heaven.

But there is more, let’s look at the story of Paul’s voyage to Rome in Acts 27. He is a prisoner being escorted to stand before Caesar. He has a guard who is watching him as he travels by ship across much of the Mediterranean.

Because of the time of the year, the trip will be hard. The weather is very iffy, and awful storms could pummel a ship at times. No matter what, it will be a hard journey. Sometimes that happens.

 “When a light wind began blowing from the south, the sailors thought they could make it. So they pulled up anchor and sailed close to the shore of Crete. 14 But the weather changed abruptly, and a wind of typhoon strength (called a “northeaster”) burst across the island and blew us out to sea. 15 The sailors couldn’t turn the ship into the wind, so they gave up and let it run before the gale.”
16 “We sailed along the sheltered side of a small island named Cauda, where with great difficulty we hoisted aboard the lifeboat being towed behind us. 17 Then the sailors bound ropes around the hull of the ship to strengthen it. They were afraid of being driven across to the sandbars of Syrtis off the African coast, so they lowered the sea anchor to slow the ship and were driven before the wind.”

Acts 27:13-17, NLT

The storm is probably a once in a lifetime experience. It seems everyone is problem-solving trying to keep the ship from “breaking up.” They are fighting for their lives. After tossing over the cargo, and the ships tackle, they would have cut down the mast. Leaving it up would only weaken the ship’s hull, which reduces their chances.

They then did something called “frapping.”

It involved wrapping ropes or cables around the hull in a criss-cross manner. This outside strengthening would have been “levered” to increase tightness. It could be an effective way of surviving the unsurvivable.

There is a specific Greek word to describe this frapping. It is used in only one other place in the entire Bible. In Hebrews 4:16 we read–

“So let us come boldly to the throne of our gracious God. There we will receive his mercy, and we will find grace to help us when we need it most.

Can you see the connection? In these desperate times when the storm is ripping up everything, attempting to destroy us– our families, our friends and neighbors. Just survival seems a long stretch. It is then that Jesus fraps (or wraps) us tightly.

But many of us go through typhoons with the cables coiled up on deck. We seem oblivious and ignorant of its availability. We really don’t see the “present tense’ ministry of Jesus standing to intercede. We merit nothing– but He promises us everything. We are on the knife’s edge of falling apart, but perhaps it’s our own fault?

I believe this message has not come to you by accident. You are either in the storm, or know someone who is there. The name of this post is, “Jesus Actively Helps Me.” I hope you will see it, you will need it.

Jesus Christ carries on intercession for us in heaven; the Holy Ghost carries on intercession in us on earth; and we the saints have to carry on intercession for all men.”

     Oswald Chambers

ybic, Bryan

Walking the Wire Again

I hope everybody can find a little flame
Me, I say my prayers,
then just light myself on fire
and walk out on the wire once again.”  

Counting Crows, “Goodnight Elizabeth”

Hope is a powerful thing— nothing compares. It truly is the ‘anchor of the soul.’ Without it, life would be hopeless, and that is intolerable to a human being.

We will implode without hope. The psalmist was well aware of this tendency; he speaks to himself about this. He ‘talks to himself’ which can seem a little weird to some.

“Why are you discouraged, my soul?
    Why are you so restless?
        Put your hope in God,
            because I will still praise him.
                He is my savior and my God.”

Psalm 42:11

Day-to-day life can be arduous. Sometimes faith falters and hopelessness becomes a real and deadly option. For those of us with debilitating illnesses this can be significant hazard. Depression can severely hinder us.

The writer of Psalm 42 understood this. Discouragement was a real issue, especially when he wondered what was swirling around him. (And I daresay he is not alone in this.)

He insists a certitude. He refuses to give in to the idea that failure is final. He will not allow himself to accept the finality of hopelessness. He will not surrender himself to this idea that ‘all is lost.’ The way he battles back is seen in an inner conversation with his soul. He speaks to himself directly concerning the great faithfulness of God to his situation.

It is real, it’s definitely not fluff. He operates in reality. He can’t pretend that the feeling of despondency is imaginary, it is far too cruel and real for it not to be.

However having a hope will cement me in the goodness and mercy of God. It is the sterling silver (.925) belief that He cares for me. The verse in 42:11 ties in with praise and worship. This is not a minor thing. When we praise, we break the bonds of hopelessness, in a way that our souls can know, and appreciate. It decisively disarms the depression, and fills the embattled soul with hope.

Pain can be a powerful indicator of depression unchecked. But hope changes the manner of which we live.

–John Piper

I wish you the best even as the battle intensifies. Jesus is enough. Look around, see Him and run right to Him. Your faith will hold you.

Sifted Wheat, [Trial]

 

Threshing Wheat
“Simon, Simon, Satan has asked to sift each of you like wheat.  But I have pleaded in prayer for you, Simon, that your faith should not fail.”
“So when you have repented and turned to me again, strengthen your brothers.”

Luke 22:31-32

I’ve been thinking about failure;  it is something that I am really, really good at.  In my over 40 years of walking with Jesus, I realized that I’ve experienced more weak moments then strong.  I have easily failed more than I have succeeded. I am embarrassed by this.  I’ve sinned, and failed more as a Christian, than I ever did as a pagan sinner. And things sometimes show little sign of improving. 

Simon Peter is about to undergo a trial so intense and difficult, that unless Jesus intervenes it will probably destroy Peter.

(The only other blatant attack where Satan seeks permission is in the life of Job. It is reasonable to believe that the forces of hell are concentrated on Peter.)

You and I undergo some of this onslaught ourselves.  We go through periods of intense trial.  Everything just falls apart, and we lose hope.  I’ve had several periods like that, it’s like a tornado from hell bears down upon my life.

But there is something remarkably good in all of this.

  • First, Jesus is praying for me to endure.  He is the faithful intercessor for my soul.
  • Second, He gives us a modicum of understanding by warning us of the approaching storm.  Peter is told ahead of time of what was going to happen.
  • Third, the wheat will be sifted.  Sifting or winnowing of the grain is necessary, it’s a good and godly work of the Holy Spirit. It is a good thing, as it builds your faith.
  • Four, you will survive to strengthen your brothers and sisters.

All pain and failure gives us a mandate to serve others. Our weakness gives us a spiritual license to become a shepherd of mercy and hope.  (You could say that you are now a licensed minister.)

We can ask for nothing more; it is a good and profound work to serve others.

In love’s work, only sifted people can truly serve.