Handling a Diagnosis of Tardive Dyskinesia

Tardive Dyskinesia (TD) is a condition of involuntary, repetitive movements of the jaw, tongue or other body movements. It frequently is a side effect of the long-term use of antipsychotic drugs used to treat schizophrenia or bipolar disorder. It is almost always permanent. I’ve been told Vitamin E might help a bit.  Benzodiazepines have also been used with mixed results on a short-term basis.

Some examples of these types of involuntary movements include:

  • Grimacing
  • Tongue movements
  • Lip smacking
  • Lip puckering
  • Pursing of the lips
  • Excessive eye blinking

(Wikipedia)

I recently was diagnosed as having TD after the use of Zyprexa. My version is my lower jaw moves from side-to-side, unless I concentrate on not doing it. I quickly revert to this involuntary movement when I’m not aware of it. I recently saw a video of myself (with my family) and sure enough there I was, doing the ‘jaw thing.’ It was very obvious. It was also very embarrassing. (I have the ‘lithium jitters’— where my hands always shake, but TD is different.)

There are a couple of things I might mention:
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1) I’ve discovered that there is a real social isolation with this TD stuff. To be doing this in public is “not acceptable.” I have had people come up to me wanting to know what’s my problem. Since I can’t control the movement I just say, “It’s my meds— they affect me this way.” In a way it’s like wearing a neon sign saying, “I’m a fruit cake.” Having a mental illness is stigma enough, but the TD just puts a new edge on it.

2) As a natural introvert the isolation has only deepened. (I avoid crowds and most social engagements.) I guess if the truth be told, I’m uncomfortable when others look at me strangely or whisper to each other. My standard ‘paranoia level’ has taken a new twist. I feel I’m compelled to explain. I guess I’m embarrassed when others are embarrassed.

3) I settle myself down in my faith to cope. I know I’m not alone in this– the Lord Jesus is always with me. He holds me tight through all these twists and turns. Since I isolate myself so much, I savor the connection I have with a few friends who have become inured to my condition. Social media helps out— Facebook is a big help, as well as my two blogs.

4) One of the things I try to remember are the issues of selfishness and pride. I keep reminding myself it’s not about me all the time. One of the significant areas mentally ill people deal with is self-absorbed thinking. It seems it comes with the illness.

5) I try to keep a sense of humor everyday. It breaks down the mental pain to tolerable levels. We can take ourselves too seriously sometimes. Be more patient with yourself. I know I have to.

I ask that you remember me in prayer from time-to-time. I’m in ‘uncharted waters’ (it seems) and I sometimes feel all alone with my mental illness and all its tangents. I want good to come out of this. (An instantaneous healing would be o.k. But, I’m not too finicky.) Sorry for so much.

If you can’t pray, don’t feel at all impinged upon.

Under Quarantine

quarantine

Quarantines are a real possibility, even to this day. A quarantine is imposed when a disease is contagious enough that it would harm a society: Measles, Smallpox, and the recent COVID-19 are just a few physical diseases where isolation must be imposed.

It can be severe— an epidemic, with desperate consequences if not adhered to; in some rare cases, the use of deadly force has been authorized to maintain a quarantine until the disease is no longer communicable.

This may surprise you, but there are examples of ‘quarantines’ in the Bible.

The term ‘unclean’ was used for ‘leprosy.’ Those afflicted had to isolate themselves; they had to ‘announce’ their presence when in contact with society. Lepers lived in groups away from the general populace, as a result of their disease.

In Paul’s epistle to the Corinthians, he addresses another kind of ‘quarantine.’ The situation was dire; the church had advocated a Christian living with his father’s wife.

“I have already passed judgment on this man 4 in the name of the Lord Jesus. You must call a meeting of the church. I will be present with you in spirit, and so will the power of our Lord Jesus. 5 Then you must throw this man out and hand him over to Satan so that his sinful nature will be destroyed and he himself will be saved on the day the Lord returns.”

1 Corinthians 5:3-5, NLT

Understanding the Principle of Usefulness

“Now in a large house, there are not only gold and silver vessels, but also vessels of wood and of earthenware, and some to honor and some to dishonor.”

2 Timothy 2:20, NASB

Found in God’s pantry are lots of pots and pans of various uses.  Paul writes Timothy about the ‘large house’ which is the Church inclusive. Look around Timothy, there are gold ones, and there are silver ones. They have a noble purpose fitting for such a great house. These are the ones the guests will use; they befit the significance of the Lord himself. These vessels have great value for they are made of precious metals.

There are vessels of different categories. These are the ones made of wood, and of clay. These are part of the household, make no mistake about it. But their use is one of function, they’re utilized in common and ignoble ways. (A clay ‘bed-pan’ perhaps?!)

21 “Therefore, if anyone cleanses himself from these things, he will be a vessel for honor, sanctified, useful to the Master, prepared for every good work.”

2 Timothy 2:21

Paul, the author of the New Testament doctrine of grace emphasizes the place of personal holiness. We are to ‘cleanse’ ourselves to become a vessel of honor. There is good news here:

  • All are vessels in the Father’s house. Each of us belongs to Him. He alone determines their use.
  • Things are not yet in their final state. Changes in status can be experienced. In God’s economy, clay pots can become ‘golden.’ Silver can become ‘wood.’

Some sin is contagious.

It affects believers, and the Church becomes compromised by what we’ve done. And then sometimes we are quarantined by the Holy Spirit–until the contagion passes. This spiritual disease must not be permitted.

I have experienced this several times in my own discipleship. These are not pleasant times, but there is no condemnation. I’m still His servant, His love for me stays outrageously constant. He has never turned away a sinning child who repents of their sin.

“Yes, I am His servant, but I must wait out in the hall. I haven’t been faithful. So I sit in His waiting room, waiting for His call. This is for my good. And my Father knows what is best.” 

Messed Up People

Elijah was suicidal. Job wished he had never been born. David understood deep depression. Moses was anxious. Hannah was barren. Jonah was angry. Paul was all alone in a prison cell.

And actually, this is only a brief list. The Bible is loaded with flawed people who stumbled trying to be faithful. God uses imperfect people, because there really isn’t any other kind to be found. And there were others.

Noah got spectacularly drunk. Abraham lied. Jacob repeatedly deceived others. Rahab was a whore. Samson lusted. David committed adultery and was a murderer. Peter denied Christ.

Why does God favor and love people who are so disturbed? Honestly, none of us measure up. It seems He uses the weak to carry out a plan and a purpose of redeeming others, and establishing a Kingdom. He takes messes and gives them His message.

He is Love– 100% of the time, and He loves you, and He loves me, He loves the world. (John 3:16.)

Messed up people of faith become instruments and vessels of grace to other messed up people. We carry a treasure that is not ours. Sometimes it takes years to see this. I hope you can understand this. I hope it doesn’t take long.

And nothing is ever really wasted. Our mistakes (sins) become useful things to Him. For example, David’s sin would be transformed into Psalm 51 and 32. Yes, his disobedience had consequences, I won’t dispute that, but something wonderful also came when he repented.

David paid an awful price for his sin. That disobedience almost destroyed him. Not only did it separate him from God, but his family felt the effects of his evil actions.

Yes, you need to repent. But when sin is destroying you, it does seem you need to turn from it, and leave it now.

The first two verses of Psalm 51 can bring tears when we finally understand their profound beauty, for they came out of David’s personal evil:

Psalm 53:1-2, ESV

For thousands of years people of real faith have come and drawn beauty and grace from this song. David knew his sin was real, and incredible pain emerged from that, but the Psalm did also.

Please do not try to hide or excuse your sin, it always has the most awful consequences.

Broken people can be forgiven, redeemed and used. Sometimes I think God gets special enjoyment out of picking the worst and patiently loving us to wholeness. If you really know Him, and know your flaws, you’re well on your way of usefulness in His kingdom.

“But we have this treasure in jars of clay, to show that the surpassing power belongs to God and not to us.”

2 Corinthians 4:7

Loving Others (Just Like Jesus Loves Us)

 

““A new command I give you: Love one another. As I have loved you, so you must love one another. By this everyone will know that you are my disciples, if you love one another.””

– John 13:34-35

What is “love” like?  How do we consistently understand love when we fall short of it all the time?

We understand love by coming to know Jesus.  He not only explains it, but He also exhibits it–He puts it out in the public eye for all to see.  His explanation of what love is will mean a cruel death in order to save us.  When Jesus dies, I am saved.  My salvation has absolutely nothing to do with me– and everything to do with Him, and all that He has done.

Jesus helps us to see others.  He makes a definitive statement, that we are to love others.  We are to use what He has done for me, as an example.  What Jesus did is the pattern, the prototype.  We are to be the photostat or mimeograph.  As believers we are to be captured and drawn into this approach.

We are to find someone, and then, in some sense, ‘die’ for them. That is the way God’s love is.

That very strong word, “must“ in verse 34 cannot escape our attention.  It implies a deep and a very definite commitment to doing that is beyond us.  We ‘must’ connect and receive all that moves through our life.  We love the unlovely, and this is irrational. God says that people are worth crucifixion. We’re the criminals, and the judge has sentenced us. And then He Himself has decided to pay our penalty. This is ‘agape’ love.

We must love accurately. We should love the way He loves us.  We cannot do anything less. 

But the love of Jesus is tracking each wanderer.  He is working to connect with every person on this planet.  No one escapes His view, or His love.  Everyone who belongs to Him, is required to know this.  Our Lord is definitely not going to move if there are still “seekers” still out there.  He leaves no one behind.

Loving others will require a significant broadening of the way we see things.  We purposefully lift up Jesus because He lifted us.  We exalt Him because we have discovered we are so pitiful.  We must be convinced, that His way, is the way of the cross.

We must love more accurately —the same way He loves us.  We cannot do anything less.  For many of us, love is just a concept–a way of feeling ‘warm and fuzzy’ inside.  But it is far more than feeling nice thoughts. It is all about “the extra mile” and we honestly can’t make that trip if we haven’t been willing to die ourselves.