Handling a Diagnosis of Tardive Dyskinesia

Tardive Dyskinesia (TD) is a condition of involuntary, repetitive movements of the jaw, tongue or other body movements. It frequently is a side effect of the long-term use of antipsychotic drugs used to treat schizophrenia or bipolar disorder. It is almost always permanent. I’ve been told Vitamin E might help a bit.  Benzodiazepines have also been used with mixed results on a short-term basis.

Some examples of these types of involuntary movements include:

  • Grimacing
  • Tongue movements
  • Lip smacking
  • Lip puckering
  • Pursing of the lips
  • Excessive eye blinking

(Wikipedia)

I recently was diagnosed as having TD after the use of Zyprexa. My version is my lower jaw moves from side-to-side, unless I concentrate on not doing it. I quickly revert to this involuntary movement when I’m not aware of it. I recently saw a video of myself (with my family) and sure enough there I was, doing the ‘jaw thing.’ It was very obvious. It was also very embarrassing. (I have the ‘lithium jitters’— where my hands always shake, but TD is different.)

There are a couple of things I might mention:
generics7

1) I’ve discovered that there is a real social isolation with this TD stuff. To be doing this in public is “not acceptable.” I have had people come up to me wanting to know what’s my problem. Since I can’t control the movement I just say, “It’s my meds— they affect me this way.” In a way it’s like wearing a neon sign saying, “I’m a fruit cake.” Having a mental illness is stigma enough, but the TD just puts a new edge on it.

2) As a natural introvert the isolation has only deepened. (I avoid crowds and most social engagements.) I guess if the truth be told, I’m uncomfortable when others look at me strangely or whisper to each other. My standard ‘paranoia level’ has taken a new twist. I feel I’m compelled to explain. I guess I’m embarrassed when others are embarrassed.

3) I settle myself down in my faith to cope. I know I’m not alone in this– the Lord Jesus is always with me. He holds me tight through all these twists and turns. Since I isolate myself so much, I savor the connection I have with a few friends who have become inured to my condition. Social media helps out— Facebook is a big help, as well as my two blogs.

4) One of the things I try to remember are the issues of selfishness and pride. I keep reminding myself it’s not about me all the time. One of the significant areas mentally ill people deal with is self-absorbed thinking. It seems it comes with the illness.

5) I try to keep a sense of humor everyday. It breaks down the mental pain to tolerable levels. We can take ourselves too seriously sometimes. Be more patient with yourself. I know I have to.

I ask that you remember me in prayer from time-to-time. I’m in ‘uncharted waters’ (it seems) and I sometimes feel all alone with my mental illness and all its tangents. I want good to come out of this. (An instantaneous healing would be o.k. But, I’m not too finicky.) Sorry for so much.

If you can’t pray, don’t feel at all impinged upon.

The Caged Bird is Now Free

caged-bird

“Whoever dwells in the shelter of the Most High
    will rest in the shadow of the Almighty.
I will say of the Lord, “He is my refuge and my fortress,
    my God, in whom I trust.” 

Psalm 91:1-2, NIV

Psalm 91 focuses on being intimate with our heavenly Father.

Throughout the entire chapter we see personal pronouns used. In contrast to other psalms that are directed to the nation, this one is written to an individual. This personal focus makes this a favorite psalm for many.

Shelter and shadow, refuge and trusting.

These four are the opening ‘word pictures,’ and they are used with wisdom and an alert discernment. The psalmist writes what he knows, and it is apparent that he understand the needs of the human spirit, and our need for protection.

Each of these four words creates a common link between believers. Each of us need a working understanding of all four protections.

These four are necessary elements for Psalm 91 to really work. I should ‘dwell’ in God’s sheltered care. All too often, I wander out past the security of the Lord (or maybe I’m lured out?) But there is safety in having God so close to us.

His proximity is for my protection.
“Surely he will save you
    from the fowler’s snare
    and from the deadly pestilence.
He will cover you with his feathers,
    and under his wings you will find refuge;
    his faithfulness will be your shield and rampart.”

Psalm 91:3-4

silhouette-bird-on-branch-grangerV.v. 3-4, maintains its personal or familiar tone. ‘Save you’ (salvation) is far more that a theological term.  For the psalmist however, it’s not about ‘doctrine’; rather the psalm is an embrace. He is rescued from the trap, and the sickness that seems so contagious never touches him. Moving from metaphor to metaphor, he engages our imaginations to ‘see’ God’s salvation. The writer knows his stuff.

The Lord is pictured as a protective bird that covers his chicks with His wings.

We have a sure confidence as we gather together in that warm and safe spot under His wing. Whatever is after us has to go through God first. His presence is formidable. In His company is found true safety.

“What, then, shall we say in response to these things? If God is for us, who can be against us? Who will bring any charge against those whom God has chosen? It is God who justifies.”

Romans 8:31, 33

All of heaven is rallying for your well-being. You are sure of this based on your faith in God’s own word. He has ‘busted us’ out of a dark cage, and now defends you against all your enemies. And that is a very good thing.

 

The Shepherd’s Oil

I have to admit, I always wondered what this verse in Psalm 23 meant. I thought He anoints my head with oilwas a nice poetic phrase for God blessing David. But as I delved deeper into the context and explored different interpretations, a beautiful and profound meaning unfolded before my eyes.

First of all the act of anointing with oil holds significant cultural and spiritual symbolism in biblical times. It was a practice to anoint guests as a sign of honor and welcome, especially in lavish feasts and celebrations.

Anointing with oil also had medicinal purposes, as it could soothe and heal various ailments. (Now that’s interesting, I thought.)

In the context of Psalm 23, the phrase “He anoints my head with oil” takes on a deeper metaphorical meaning. It signifies God’s abundant blessings, His provision, and His care for His people. Just as a host anoints the head of a guest as an act of honor and hospitality, God lovingly anoints us with blessings and favor.

Moreover, the act of anointing with oil has spiritual connotations. In ancient religious rituals, anointing with oil was a sign of consecration, setting apart someone or something for a holy purpose.

This verse also portrays a practical picture of medicinal shepherding.

In biblical times, shepherds used oil to treat and protect the sheep’s wounds and keep insects away from their heads. By anointing our heads with oil, God brings healing and comfort to our brokenness, soothing our hurts and protecting us from the turmoil of life.

Sheep often can do harmful things to themselves as they try to find relief from flies and ticks.

Their ears and eyes can be targets for tormenting insects as well.

Sheep have been known to bash their heads against rock walls to dislodge flies from their ears, noses, and eyes. A good shepherd watches closely over his flock. He watches over them carefully.

A good shepherd knows that poured out oil forms a barrier of protection against these things that would try to destroy the sheep.

Have you ever asked God to anoint your head with oil?

Psalm 23 as a whole beautifully paints a picture of God as our loving and caring Shepherd, guiding us, providing for us, and protecting us. The imagery of anointing with oil further illuminates the depth of His love and the extent of His care. It reminds us that we are chosen and cherished by God, and that His blessings are abundant and unending.

But ask yourself these questions. Do you have times of mental torment? Do the worrisome thoughts invade your mind over and over? Do you beat your head against a wall trying to stop them?

The Holy Spirit can come with His endless supply of oil!

“You prepare a table before me
    in the presence of my enemies;
you anoint my head with oil;
    my cup overflows.”

Psalm 23:5, ESV

Oh how He loves you!

Walking the Wire Again

I hope everybody can find a little flame
Me, I say my prayers,
then just light myself on fire
and walk out on the wire once again.”  

Counting Crows, “Goodnight Elizabeth”

Hope is a powerful thing— nothing compares. It truly is the ‘anchor of the soul.’ Without it, life would be hopeless, and that is intolerable to a human being.

We will implode without hope. The psalmist was well aware of this tendency; he speaks to himself about this. He ‘talks to himself’ which can seem a little weird to some.

“Why are you discouraged, my soul?
    Why are you so restless?
        Put your hope in God,
            because I will still praise him.
                He is my savior and my God.”

Psalm 42:11

Day-to-day life can be arduous. Sometimes faith falters and hopelessness becomes a real and deadly option. For those of us with debilitating illnesses this can be significant hazard. Depression can severely hinder us.

The writer of Psalm 42 understood this. Discouragement was a real issue, especially when he wondered what was swirling around him. (And I daresay he is not alone in this.)

He insists a certitude. He refuses to give in to the idea that failure is final. He will not allow himself to accept the finality of hopelessness. He will not surrender himself to this idea that ‘all is lost.’ The way he battles back is seen in an inner conversation with his soul. He speaks to himself directly concerning the great faithfulness of God to his situation.

It is real, it’s definitely not fluff. He operates in reality. He can’t pretend that the feeling of despondency is imaginary, it is far too cruel and real for it not to be.

However having a hope will cement me in the goodness and mercy of God. It is the sterling silver (.925) belief that He cares for me. The verse in 42:11 ties in with praise and worship. This is not a minor thing. When we praise, we break the bonds of hopelessness, in a way that our souls can know, and appreciate. It decisively disarms the depression, and fills the embattled soul with hope.

Pain can be a powerful indicator of depression unchecked. But hope changes the manner of which we live.

–John Piper

I wish you the best even as the battle intensifies. Jesus is enough. Look around, see Him and run right to Him. Your faith will hold you.