The Invisible Pain of Fibromyalgia

I posted this recently on my blog, Linda Kruschke’s Blog.

This post was inspired by a flare-up of my fibromyalgia. One of my fellow bloggers who has bipolar commented that the pain of bipolar is also a form of invisible pain. It occurred to me then that this is a perfect post for the encouragement of broken believers, many of whom struggle with some form of invisible pain, whether physical or mental pain.

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I didn’t want to write about fibromyalgia, but then I realized that sharing my struggles with this syndrome might help someone who also struggles with invisible pain.

When someone breaks a leg, suffers a severe burn, or is covered with cuts and bruises it is easy for people to see what is wrong and to sympathize. But the pain of fibromyalgia is invisible pain. From the outside, the person suffering from the pain of fibromyalgia looks just fine, and so people don’t understand what they are going through.

It is also an unpredictable pain with no easily determinable cause or trigger.

One day you feel just fine and you wake up the next day feeling like you got run over by a freight train. I’ve gone for months feeling fine, with very little pain, then suddenly every muscle in my body aches, and certain movements cause sharp pains in my legs, arms, and neck.

I try to figure out why.

I’ve had doctors give me conflicting theories of what causes this pain, and I have read conflicting theories as well. One doctor told me it is a chemical imbalance in the brain. Another has told me it is caused by what I eat, by an inability of my muscles to process sugar that results in toxins in my muscles.

Another suggested it is a symptom of Post-Traumatic Stress Disorder that stems from some early trauma. I had also read that there was a strong link between fibromyalgia and Epstein Bar Virus (or mononucleosis), which I had when I was in junior high. Finally, I have read that it is simply hereditary.

The pain of fibromyalgia is truly invisible.

There is no medical test that shows whether someone has fibromyalgia. There is a “tender point” test in which the doctor checks 18 designated tender points on the body and if 11 or more are tender to the touch a diagnosis of fibromyalgia can be made. But even that test is somewhat subjective.

All my life I have felt pain in circumstances where someone else thought I shouldn’t have felt pain. I can remember saying something hurt when I was a kid only to be told, “That didn’t hurt.” This summer I experienced pain from something that didn’t seem like it should hurt.

I was at my cousin’s house in Houston and his granddaughter was playing with three pine cones. She kept handing them to me to play with, but the sharp points started to really hurt my hands. I said I didn’t want to play anymore because it made my hands hurt. My sister looked at me and asked, “Does that really hurt?”

Invisible pain. It’s extremely difficult to cope with sometimes.

But I know that Jesus knows how I feel, and that gives me a great deal of comfort. Although the pain Jesus experienced when He was scourged, beaten, and crucified was quite visible, He experienced an invisible pain, too. He experienced the pain of having the sin of the world laid upon Him and of His Father turning away as He cried out:

“My God, My God, why have You forsaken me?”

Matthew 27:46 (NIV).

If you struggle under the weight of invisible pain, take heart that you are not alone. Christ understands your suffering and your pain. You also have fellow Christians who understand what you are going through. The apostle Peter provided for us who suffer a wonderful encouragement in his first epistle:

Humble yourselves, therefore, under God’s mighty hand, that he may lift you up in due time. Cast all your anxiety on him because he cares for you.

Be self-controlled and alert. Your enemy the devil prowls around like a roaring lion looking for someone to devour. Resist him, standing firm in the faith, because you know that your brothers throughout the world are undergoing the same kind of sufferings.

And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast. To him be the power for ever and ever. Amen. 

1 Peter 5:6-11 (NIV).

Satan would love to devour us in our pain.

He wants to make us fall and cease to be of use in God’s kingdom. But if we cling to Jesus, and cast all of our fears and anxiety on Him, He will help us to defeat Satan’s plans.

If you are struggling with invisible pain and feeling like you are at your wit’s end, leave me a comment and I would love to pray for you. It would be a blessing to me to be able to ask our Lord to strengthen you and give you peace and comfort so that you might be enabled to stand firm in your faith. Would you do the same for me?

My site is anotherfearlessyear.net, Please visit me.

 

Scorched, but Deeply Loved

“But he turned and said to Peter, “Get behind me, Satan! You are a hindrance to me. For you are not setting your mind on the things of God, but on the things of man.”

Matt. 16:23

The principles of the Kingdom will often confuse an outsider.  In this chapter of Matthew, we hear Peter extolling the divinity of Jesus (vv. 15-17).  Peter exceeds the norm with his analysis of what he believes is real and true.

Peter’s insight is as perceptive as it is supernatural.  “You are the Christ,” Peter proclaims, “the Son of the Living God,”  Jesus responds to this and He praises Peter for his sensitivity.

But, just a short time after he makes his astonishing pronouncement, he is taken apart by Jesus, being solidly rebuked face-to-face.  In one clear and singular moment, he expresses a wonderful faith, and then suddenly his personal awareness precipitously crashes.  He is now an evil person with Satan’s agenda. (See verse 23.)

I’m not sure why Peter does what he does. 

It seems that in the light of this chapter (which actually seems like a bright glare), Peter is devastated.  In three years of discipleship, it seems that all he merits is a brutal ‘dressing-down.’ All because he thinks he can correct Jesus, “the Son of the Living God.”

The rebuke is bitter.  Peter is being compared to Satan!

I suspect that Peter was ashamed.  He most likely wished he had a rewind button.  His Savior, Jesus– has given him a new label.  And it hurts.  Many times, we would become resentful, maybe a bit bitter.  It could cause some to walk away, developing an anger that solidifies into a permanent offense. Thank God, Peter doesn’t do anything that stupid.

The correction in the rebuke gives him life and hope.

But who’s to say we would be as correctable?  Peter was rebuked in the presence of the other disciples.  The publicity was embarrassing.  Too many people were watching and listening. Peter will survive this, but he has to learn something valuable.

Our daily commitment to Jesus hinges on our willingness to be undone. 

Jesus pretty much rakes us over the coals.  He insists on total obedience to His faithfulness. And like Peter, we will learn. It may take some time though.

Every true disciple will be scorched– but incredibly loved.

Have Courage

By Joni Eareckson Tada

 (818) 707-5664 | info@joniandfriends.org

After more than four decades of quadriplegia, I’m tired. My bones are weary from battling everything from pressure sores and pneumonia to stage III cancer. My question these days is never “Why, God?” It’s most often “How?” How do I keep on going? How do I care about others when I’m consumed with my own physical challenges? How can I be kind and civil when pain wracks me?

The other morning Ken could see the weariness in my eyes. Right before I wheeled out to go to the van, he said, “Wait here; I know exactly what you need.” He rushed back with a yellow post-it note. On it he had penned the letter ‘C’ with a felt-tipped marker. I gave him an odd look. “It stands for Courage,” he said, “the courage of Christ. I can see it in your eyes, Joni, and you can do this day. I know you can!” With that, he pressed the post-it on my shirt, right above my heart.

I can’t explain what happened next, but I could feel God’s encouragement. 

Ken only said a few words, but they were brimming with power and life. His was a declaration of the good he saw in me; or, at least the good he wanted to see. And God gave me his amazing grace to rise to the occasion.

Even the best of Christians can feel the weight of weariness. It’s why Hebrews 3:13 tells us to “Encourage one another daily.” Think of the people you’ll see today: friends recovering from surgery, neighbors dealing with grief, coworkers coping with pain. Whether you say it in an email, over the phone, or in person, your words have the capacity to change their countenance and character. And the best word? The Word made flesh, Jesus, who always has courageous words of life.

Oh, Father, I need the courage of Christ to face this day’s demands. Thank you for making me strong in him.

Joni Eareckson Tada, Founder of Joni and Friends, is an international advocate for people with disabilities. A diving accident in 1967 left Joni with permanent quadriplegia. After rehabilitation she emerged with new skills and fresh determination to help others in similar situations. She founded Joni and Friends in 1979 to minister to people living with disability. For over 40 years Joni and Friends has served thousands of families navigating disability, and has delivered over 225,000 wheelchairs and Bibles to individuals with disabilities in developing nations. Joni has survived breast cancer twice and lives with chronic pain and weakening lungs. By God’s grace Joni perseveres, keeping an active schedule, including radio recording, writing, and providing leadership and encouragement to the Joni and Friends staff. Joni and her husband Ken reside in Calabasas, California.

Should I Take Medication?

What’s Your Take on Christians Using Antidepressants?

by Pastor John Piper

I’m going to say that there are times when I think it is appropriate, but I want to go there cautiously and slowly, with warnings.

Depression is a very complex thing.

It’s got many layers. I think we all would agree that there are conditions in which nobody would deny that certain people are depressed in a pathological way because they’re immobile. They’re not even able to function.

And then there’s a continuum of discouragements and wrestlings with having an ‘Eeyore-type’ personality, which may or may not be depressed.

So that means that I want to be so careful not to have a knee-jerk reaction. When you come into my office and describe to me your discouragements, I don’t want my first response to be, “See a doctor and get a prescription.”

I fear that is way too quick today. The number of people on antidepressants as a first course rather than the last course is large.

And the assumption is that you can’t make any progress in counseling unless you get yourself stabilized or something.

So I just want to be very cautious.

As a Christian who believes that Christ is given by the Holy Spirit to deliver us from discouragements and from unbelief and sorrow and to help us live a life of usefulness, what makes me able to allow for antidepressants is the fact that medicine corresponds to physical realities.

And the physical realities are that we get headaches that make us almost unable to think. Migraine headaches can put a man out. And we are pretty much OK if the doctor can help us find some medicine that would not let us get these immobilizing headaches.

And the headaches clearly have a spiritual impact, because they’re making me unable to read my Bible and function in relation to people that I want to love and serve. And so medicine becomes spiritually effective in that way.

In the short run especially, sometimes long term—then I think, in God’s grace and mercy, we should take it as a gift from his hand.

If that physical dimension could be helped by medicine.

So we apply this principle that we all use to depression, and then the fact that the body is included in depression. Whether we should use the terms “chemical imbalances”—I’ve read both sides on that. Some people say that there is no scientific evidence for such a thing and others say that it is a given. Whatever. Everybody knows that there are physical dimensions to depression.